Hashimoto encephalitis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Hashimoto encephalitis?

Hashimoto's encephalitis (HE) is a rare autoimmune disease with neurological and psychiatric features. The condition is characterized by high titers of antithyroid antibodies in blood and cerebrospinal fluid (CSF).

Common symptoms reported by people with Hashimoto encephalitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Hashimoto encephalitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
1
Tried for
Hashimoto encephalitis (1)
Treatment name(s)

(Synthroid)
Type
Prescription Drug
How many have tried
1
Tried for
Hashimoto encephalitis (1)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
1
Tried for
Hashimoto encephalitis (1)

Data from patients with Hashimoto encephalitis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Hashimoto encephalitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Imuran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Hashimoto encephalitis (1)
Treatment name(s)

(Synthroid)
Perceived effectiveness
No evaluations
Side effects
fatigue
Total evaluations
1
Tried for
Hashimoto encephalitis (1)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Deltasone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Hashimoto encephalitis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Hashimoto encephalitis, who reported starting treatments within the last 5 years.
Last updated:

Who has Hashimoto encephalitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 1
30s 4
40s 9
50s 9
60s 4
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 1
30-39 years 3
40-49 years 1
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 23

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 14
Not Diagnosed 1

These charts show data from Hashimoto encephalitis patients who have completed their condition history
Last updated: