Von Willebrand disease

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What is von Willebrand disease?

von Willebrand disease is an hereditary or acquired bleeding disorder characterized by a deficiency of the von Willebrand factor resulting in platelet dysfunction. The von Willebrand factor plays an important role in blood clotting.

Common symptoms reported by people with von Willebrand disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with von Willebrand disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(5 HTP TR)
Type
Supplement
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Type
Prescription Drug
How many have tried
1
Tried for
von Willebrand disease (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(DDAVP)
Type
Prescription Drug
How many have tried
1
Tried for
von Willebrand disease (1)
Treatment name(s)

(Loestrin 24 Fe)
Type
Prescription Drug
How many have tried
1
Tried for
von Willebrand disease (1)
Treatment name(s)

(Luvox)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
fatigue (1)

Data from patients with von Willebrand disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with von Willebrand disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
daytime sleepiness drowsiness 2 more
Total evaluations
2
Tried for
pain (4)
Treatment name(s)

(5 HTP TR)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
anxious mood (1)
Perceived effectiveness
for von Willebrand disease (1 evaluation)
Side effects
Total evaluations
1
Tried for
von Willebrand disease (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(DDAVP)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
von Willebrand disease (1)
Treatment name(s)

(Loestrin 24 Fe)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
von Willebrand disease (1)
Treatment name(s)

(Luvox)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with von Willebrand disease, who reported starting treatments within the last 5 years.
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Who has von Willebrand disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 17
30s 15
40s 17
50s 20
60s 10
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 34
20-29 years 5
30-39 years 5
40-49 years 5
50-59 years 0
60-69 years 1
70+ years 1

Sex

Distribution of sex

88% Female
12% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 56
Not Diagnosed 5

These charts show data from von Willebrand disease patients who have completed their condition history
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