Microscopic colitis

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What is microscopic colitis?

Microscopic colitis has two main forms: collagenous colitis and lymphocytic colitis. Slight differences in the way intestinal tissues appear set them apart. In both forms, an increase in white blood cells can be seen within the intestinal epithelium—the layer of cells that lines the intestine.

Common symptoms reported by people with microscopic colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with microscopic colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
17
Tried for
microscopic colitis (17)
Treatment name(s)

(Imodium)
Type
Over the Counter Drug
How many have tried
6
Tried for
microscopic colitis (6)
Treatment name(s)

(Questran)
Type
Prescription Drug
How many have tried
4
Tried for
microscopic colitis (4)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
2
Tried for
microscopic colitis (2)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Type
Supplement
How many have tried
1
Tried for
microscopic colitis (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
microscopic colitis (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with microscopic colitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with microscopic colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for microscopic colitis (17 evaluations)
Side effects
weight gain abdominal bloating 6 more
Total evaluations
17
Tried for
microscopic colitis (17)
Treatment name(s)

(Imodium)
Perceived effectiveness
for microscopic colitis (5 evaluations)
Side effects
headaches vision loss
Total evaluations
5
Tried for
microscopic colitis (6)
Treatment name(s)

(Questran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
microscopic colitis (4)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Pentasa)
Perceived effectiveness
for microscopic colitis (2 evaluations)
Side effects
Total evaluations
2
Tried for
microscopic colitis (2)
Treatment name(s)

(Adderall)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Perceived effectiveness
for microscopic colitis (2 evaluations)
Side effects
Total evaluations
2
Tried for
microscopic colitis (1)
Treatment name(s)
Perceived effectiveness
for microscopic colitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
microscopic colitis (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with microscopic colitis, who reported starting treatments within the last 5 years.
Last updated:

Who has microscopic colitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 15
30s 26
40s 52
50s 77
60s 85
70+ 55
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 16
20-29 years 14
30-39 years 22
40-49 years 39
50-59 years 24
60-69 years 15
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 32
Female 281

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 156
Not Diagnosed 3

These charts show data from microscopic colitis patients who have completed their condition history
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