Microscopic colitis

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What is microscopic colitis?

Microscopic colitis has two main forms: collagenous colitis and lymphocytic colitis. Slight differences in the way intestinal tissues appear set them apart. In both forms, an increase in white blood cells can be seen within the intestinal epithelium—the layer of cells that lines the intestine.

Common symptoms reported by people with microscopic colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with microscopic colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
18
Tried for
microscopic colitis (18)
Treatment name(s)

(Imodium)
Type
Over the Counter Drug
How many have tried
6
Tried for
microscopic colitis (6)
Treatment name(s)

(Questran)
Type
Prescription Drug
How many have tried
4
Tried for
microscopic colitis (4)
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
3
Tried for
microscopic colitis (3)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
1
Tried for
microscopic colitis (1)
Type
Supplement
How many have tried
1
Tried for
microscopic colitis (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
microscopic colitis (1)

Data from patients with microscopic colitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with microscopic colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for microscopic colitis (19 evaluations)
Side effects
abdominal bloating weight gain 7 more
Total evaluations
19
Tried for
microscopic colitis (18)
Treatment name(s)

(Imodium)
Perceived effectiveness
for microscopic colitis (5 evaluations)
Side effects
headaches vision loss
Total evaluations
5
Tried for
microscopic colitis (6)
Treatment name(s)

(Questran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
microscopic colitis (4)
Treatment name(s)

(Pentasa)
Perceived effectiveness
for microscopic colitis (3 evaluations)
Side effects
abdominal pain headaches 1 more
Total evaluations
3
Tried for
microscopic colitis (3)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
increased appetite
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Adderall)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for microscopic colitis (1 evaluation)
Side effects
dizziness fatigue 1 more
Total evaluations
1
Tried for
microscopic colitis (1)
Perceived effectiveness
for microscopic colitis (2 evaluations)
Side effects
Total evaluations
2
Tried for
microscopic colitis (1)
Treatment name(s)
Perceived effectiveness
for microscopic colitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
microscopic colitis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with microscopic colitis, who reported starting treatments within the last 5 years.
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Who has microscopic colitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 16
30s 27
40s 54
50s 83
60s 96
70+ 65
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 14
30-39 years 23
40-49 years 40
50-59 years 24
60-69 years 15
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 34
Female 311

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 159
Not Diagnosed 3

These charts show data from microscopic colitis patients who have completed their condition history
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