What is interstitial cystitis?

Interstitial cystitis, also known as painful bladder syndrome, is a non-infectious condition with recurring discomfort or pain in the urinary bladder and the surrounding pelvic region without an identifiable disease.

How do members experience interstitial cystitis?

Top 5 symptoms reported by people with interstitial cystitis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for interstitial cystitis*

*Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with interstitial cystitis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
interstitial cystitis (2)

*Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has interstitial cystitis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 58
30s 213
40s 393
50s 454
60s 331
70+ 132

Distribution of sex

Sex

Sex Proportion # of patients
Male 67
Female 1,506