Vitiligo

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is vitiligo?

Vitiligo or leukoderma is a chronic skin disorder that causes loss of pigment, resulting in irregular pale patches of skin.

Common symptoms reported by people with vitiligo

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with vitiligo

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Deplin)
Type
Supplement
How many have tried
1
Tried for
depressed mood (1)

Data from patients with vitiligo, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with vitiligo

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
frequent urination nervousness
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
excessive sweating
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
brain fog excessive daytime sleepiness (somnolence)
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Deplin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with vitiligo, who reported starting treatments within the last 5 years.
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Who has vitiligo on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 35
30s 73
40s 71
50s 61
60s 29
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 38
20-29 years 15
30-39 years 23
40-49 years 17
50-59 years 6
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 116
Female 163

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 123
Not Diagnosed 13

These charts show data from vitiligo patients who have completed their condition history
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