Thoracic outlet syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is thoracic outlet syndrome?

Thoracic Outlet Syndrome is a condition resulting from the compression of the blood vessels or nerves in the space between the clavicle and first rib (thoracic outlet). It is caused by car accident injuries or repetitive job or sport-related injuries.

Common symptoms reported by people with thoracic outlet syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with thoracic outlet syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
6
Tried for
thoracic outlet syndrome (6) pain (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)
Type
Procedures
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Talk therapy)
Type
Psychotherapy
How many have tried
2
Tried for
pain (2) anxious mood (1)
1 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2) pain (2)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2) depressed mood (1)

Data from patients with thoracic outlet syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with thoracic outlet syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for thoracic outlet syndrome (3 evaluations)
Side effects
pain soreness 1 more
Total evaluations
3
Tried for
thoracic outlet syndrome (6) pain (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (2 evaluations)
Side effects
difficulty waking up excessive daytime sleepiness (somnolence) 1 more
Total evaluations
2
Tried for
pain (4)
Treatment name(s)
Perceived effectiveness
for pain (2 evaluations)
Side effects
blood pressure decreased dizziness and feeling faint 8 more
Total evaluations
3
Tried for
pain (3)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
for pain (1 evaluation)
Side effects
migraine headaches
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
upset stomach
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Advil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Talk therapy)
Perceived effectiveness
for pain (1 evaluation)
Side effects
insomnia agitation
Total evaluations
3
Tried for
pain (2) anxious mood (1)
1 more
Treatment name(s)

(Savella)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (2) pain (2)
Treatment name(s)

(Pamelor)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with thoracic outlet syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has thoracic outlet syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 11
30s 50
40s 52
50s 58
60s 19
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 15
20-29 years 33
30-39 years 33
40-49 years 23
50-59 years 8
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 24
Female 171

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 133
Not Diagnosed 8

These charts show data from thoracic outlet syndrome patients who have completed their condition history
Last updated: