Tourette Syndrome

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What is Tourette Syndrome?

Tourette syndrome is an inherited neuropsychiatric disorder with onset in childhood, characterized by the presence of multiple physical (motor) tics and at least one vocal (phonic) tic; these tics characteristically wax and wane.

Common symptoms reported by people with Tourette Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Tourette Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
3
Tried for
Tourette Syndrome (2) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Nature's Bounty Melatonin)
Type
Supplement
How many have tried
2
Tried for
Insomnia (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Tourette Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Thorazine)
Type
Prescription Drug
How many have tried
1
Tried for
Tourette Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Catapres TTS patch)
Type
Prescription Drug
How many have tried
1
Tried for
Tourette Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
Tourette Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Haldol)
Type
Prescription Drug
How many have tried
1
Tried for
Tourette Syndrome (1)

Data from patients with Tourette Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Tourette Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Abilify)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Tourette Syndrome (2) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Craving sweets
How many evaluations
1
Tried for
Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Nature's Bounty Melatonin)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Vivid dreams
How many evaluations
2
Tried for
Insomnia (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Tourette Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Thorazine)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Tourette Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Catapres TTS patch)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Tourette Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (3 evaluations)
Side effects
Difficulty with orgasm Muscle and joint pain
How many evaluations
3
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Tourette Syndrome (1 evaluation)
Side effects
Dizziness
How many evaluations
1
Tried for
Tourette Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Haldol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Tourette Syndrome (1)

Data from patients with Tourette Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Tourette Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 15
20s 30
30s 28
40s 16
50s 13
60s 9
70+ 2

Sex

Distribution of sex

55% Female
45% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 56
20-29 years 2
30-39 years 3
40-49 years 2
50-59 years 1
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 68
Not Diagnosed 9

These charts show data from Tourette Syndrome patients who have completed their condition history
Last updated: