Anaphylaxis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is anaphylaxis?

Anaphylaxis is an acute, severe, life-threatening allergic reaction in presensitized individuals. Allergy to medications, food, immunotherapy, or insect stings is the most frequent cause.

Common symptoms reported by people with anaphylaxis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with anaphylaxis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(EpiPen Auto-Injector)
Type
Prescription Drug
How many have tried
13
Tried for
anaphylaxis (13)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
10
Tried for
anaphylaxis (9) pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
6
Tried for
pain (6)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
4
Tried for
anaphylaxis (4)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4)

Data from patients with anaphylaxis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with anaphylaxis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(EpiPen Auto-Injector)
Perceived effectiveness
for anaphylaxis (4 evaluations)
Side effects
hyperness jittery feeling
Total evaluations
4
Tried for
anaphylaxis (13)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for anaphylaxis (6 evaluations)
Side effects
depressed mood facial swelling 4 more
Total evaluations
9
Tried for
anaphylaxis (9) pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (4 evaluations)
Side effects
allergic reaction itchy all over 1 more
Total evaluations
4
Tried for
pain (9)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (3 evaluations)
Side effects
constipation
Total evaluations
3
Tried for
pain (6)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
dizziness
Total evaluations
4
Tried for
pain (5)
Treatment name(s)

(Leg brace)
Perceived effectiveness
for pain (2 evaluations)
Side effects
swelling in knee
Total evaluations
2
Tried for
pain (5)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (4)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (3 evaluations)
Side effects
upset stomach
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(Benadryl)
Perceived effectiveness
No evaluations
Side effects
sedation
Total evaluations
1
Tried for
anaphylaxis (4)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
2
Tried for
depressed mood (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with anaphylaxis, who reported starting treatments within the last 5 years.
Last updated:

Who has anaphylaxis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 27
30s 39
40s 63
50s 52
60s 27
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 26
20-29 years 28
30-39 years 19
40-49 years 9
50-59 years 5
60-69 years 1
70+ years 0

Sex

Distribution of sex

88% Female
13% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 107
Not Diagnosed 6

These charts show data from anaphylaxis patients who have completed their condition history
Last updated: