What is Alagille syndrome?

Alagille syndrome is a genetic disorder that affects the liver, heart, kidney, and other systems of the body. A major feature is liver damage caused by abnormalities in the bile ducts. It is also associated with several heart problems, including impaired blood flow from the heart into the lungs.

How do members experience Alagille syndrome?

Top 5 symptoms reported by people with Alagille syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Alagille syndrome*

Who has Alagille syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 2
30s 0
40s 2
50s 0
60s 1
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 4