Alagille syndrome

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What is Alagille syndrome?

Alagille syndrome is a genetic disorder that affects the liver, heart, kidney, and other systems of the body. A major feature is liver damage caused by abnormalities in the bile ducts. It is also associated with several heart problems, including impaired blood flow from the heart into the lungs.

Common symptoms reported by people with Alagille syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Alagille syndrome

No data

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Compare treatments taken by people with Alagille syndrome

No data

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Got a question about living with Alagille syndrome? Members in the forum might have the answers.

Who has Alagille syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 0
30s 1
40s 0
50s 0
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

50% Female
50% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from Alagille syndrome patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Alagille syndrome through your profile, those stories and data appear here too.

Got a question about living with Alagille syndrome? Members in the forum might have the answers.