Cerebral cavernous malformation

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What is cerebral cavernous malformation?

A cerebral cavernous malformation (CCM) is a collection of small blood vessels (capillaries) in the central nervous system (CNS) that is enlarged and irregular in structure. In CCM, the walls of the capillaries are thinner than normal, less elastic, and prone to leaking.

Common symptoms reported by people with cerebral cavernous malformation

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with cerebral cavernous malformation

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Calcium 600 plus D)
Type
Supplement
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1) stress (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Spring Valley Vitamin D3)
Type
Supplement
How many have tried
1
Tried for
depressed mood (1)

Data from patients with cerebral cavernous malformation, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with cerebral cavernous malformation

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Calcium 600 plus D)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (1 evaluation)
Side effects
hunger at night
Total evaluations
1
Tried for
pain (1) stress (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Spring Valley Vitamin D3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cerebral cavernous malformation, who reported starting treatments within the last 5 years.
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Who has cerebral cavernous malformation on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 7
30s 9
40s 10
50s 13
60s 5
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 6
30-39 years 4
40-49 years 4
50-59 years 0
60-69 years 1
70+ years 0

Sex

Distribution of sex

83% Female
17% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 24
Not Diagnosed 2

These charts show data from cerebral cavernous malformation patients who have completed their condition history
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