Idiopathic Hypersomnia

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What is Idiopathic Hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

Common symptoms reported by people with Idiopathic Hypersomnia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Idiopathic Hypersomnia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
14
Tried for
Idiopathic Hypersomnia (14) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
9
Tried for
Idiopathic Hypersomnia (8) Fatigue (3)
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Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
7
Tried for
Fatigue (4) Idiopathic Hypersomnia (3)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
7
Tried for
Depressed mood (7)
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Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
6
Tried for
Idiopathic Hypersomnia (4) Fatigue (2)
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Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
3
Tried for
Depressed mood (3)
Check to add this treatment to your profile
Treatment name(s)

(Dexedrine)
Type
Prescription Drug
How many have tried
3
Tried for
Idiopathic Hypersomnia (3) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Xyrem)
Type
Prescription Drug
How many have tried
3
Tried for
Idiopathic Hypersomnia (3)
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)

Data from patients with Idiopathic Hypersomnia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Idiopathic Hypersomnia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Idiopathic Hypersomnia (6 evaluations)
Side effects
Amblyopia Anxious mood 16 more
How many evaluations
9
Tried for
Idiopathic Hypersomnia (14) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Ritalin)
Perceived effectiveness
for Idiopathic Hypersomnia (5 evaluations)
Side effects
Antsy Heart palpitations 5 more
How many evaluations
7
Tried for
Idiopathic Hypersomnia (8) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (3 evaluations)
Side effects
Hypertension Increased anxiety 2 more
How many evaluations
5
Tried for
Fatigue (4) Idiopathic Hypersomnia (3)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (5 evaluations)
Side effects
Morning nausea
How many evaluations
5
Tried for
Depressed mood (7)
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for Idiopathic Hypersomnia (4 evaluations)
Side effects
Chronic headaches Tension Headache 1 more
How many evaluations
6
Tried for
Idiopathic Hypersomnia (4) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for Depressed mood (2 evaluations)
Side effects
Decreased appetite
How many evaluations
2
Tried for
Depressed mood (3)
Check to add this treatment to your profile
Treatment name(s)

(Dexedrine)
Perceived effectiveness
for Idiopathic Hypersomnia (1 evaluation)
Side effects
Weight fluctuations
How many evaluations
1
Tried for
Idiopathic Hypersomnia (3) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
How many evaluations
1
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Xyrem)
Perceived effectiveness
for Idiopathic Hypersomnia (3 evaluations)
Side effects
Nausea Stomach upset 2 more
How many evaluations
3
Tried for
Idiopathic Hypersomnia (3)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Fatigue
How many evaluations
2
Tried for
Pain (2)

Data from patients with Idiopathic Hypersomnia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Idiopathic Hypersomnia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 29
30s 71
40s 63
50s 33
60s 14
70+ 3

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 59
20-29 years 31
30-39 years 23
40-49 years 12
50-59 years 11
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 147
Not Diagnosed 20

These charts show data from Idiopathic Hypersomnia patients who have completed their condition history
Last updated: