Idiopathic hypersomnia

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What is idiopathic hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

Common symptoms reported by people with idiopathic hypersomnia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with idiopathic hypersomnia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
23
Tried for
idiopathic hypersomnia (23) fatigue (2)
Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
13
Tried for
idiopathic hypersomnia (12) fatigue (4)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
12
Tried for
idiopathic hypersomnia (7) fatigue (6)
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
11
Tried for
idiopathic hypersomnia (9) fatigue (3)
1 more
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
7
Tried for
anxious mood (7)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
6
Tried for
depressed mood (5) pain (2)
2 more
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
5
Tried for
anxious mood (3) depressed mood (3)
1 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (2) depressed mood (2)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
3

Data from patients with idiopathic hypersomnia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with idiopathic hypersomnia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Provigil)
Perceived effectiveness
for idiopathic hypersomnia (14 evaluations)
Side effects
excessive yawning anxious mood 20 more
Total evaluations
17
Tried for
idiopathic hypersomnia (23) fatigue (2)
Treatment name(s)

(Ritalin)
Perceived effectiveness
for idiopathic hypersomnia (4 evaluations)
Side effects
loss of appetite anxious mood 2 more
Total evaluations
5
Tried for
idiopathic hypersomnia (12) fatigue (4)
Treatment name(s)

(Adderall)
Perceived effectiveness
for idiopathic hypersomnia (5 evaluations)
Side effects
shakiness tachycardia (fast heart rate) 9 more
Total evaluations
11
Tried for
idiopathic hypersomnia (7) fatigue (6)
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for idiopathic hypersomnia (7 evaluations)
Side effects
chronic headaches tension headache 1 more
Total evaluations
12
Tried for
idiopathic hypersomnia (9) fatigue (3)
1 more
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
drowsiness loss of appetite 2 more
Total evaluations
3
Tried for
anxious mood (7)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (5 evaluations)
Side effects
dizziness and feeling faint
Total evaluations
5
Tried for
depressed mood (5) pain (2)
2 more
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
decreased sex drive (libido) sexual dysfunction 1 more
Total evaluations
3
Tried for
anxious mood (3) depressed mood (3)
1 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (4)
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2) depressed mood (2)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with idiopathic hypersomnia, who reported starting treatments within the last 5 years.
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Who has idiopathic hypersomnia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 46
30s 102
40s 87
50s 61
60s 21
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 83
20-29 years 38
30-39 years 33
40-49 years 17
50-59 years 13
60-69 years 0
70+ years 0

Sex

Distribution of sex

84% Female
16% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 194
Not Diagnosed 24

These charts show data from idiopathic hypersomnia patients who have completed their condition history
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