Idiopathic Hypersomnia

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What is Idiopathic Hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

Common symptoms reported by people with Idiopathic Hypersomnia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Idiopathic Hypersomnia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
15
Tried for
Idiopathic Hypersomnia (15) Fatigue (3)
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Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
12
Tried for
Fatigue (7) Idiopathic Hypersomnia (6)
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Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
11
Tried for
Idiopathic Hypersomnia (9) Fatigue (5)
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Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
6
Tried for
Idiopathic Hypersomnia (4) Fatigue (2)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
6
Tried for
Depressed mood (6)
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
3
Tried for
Insomnia (3) Pain (2)
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Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (2) Anxious mood (1)
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Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
3
Tried for
Anxious mood (3)
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Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
3
Tried for
Pain (3)

Data from patients with Idiopathic Hypersomnia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Idiopathic Hypersomnia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Idiopathic Hypersomnia (8 evaluations)
Side effects
Amblyopia Anxious mood 15 more
How many evaluations
11
Tried for
Idiopathic Hypersomnia (15) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (5 evaluations)
Side effects
Anxious mood Decreased appetite 10 more
How many evaluations
9
Tried for
Fatigue (7) Idiopathic Hypersomnia (6)
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Treatment name(s)

(Ritalin)
Perceived effectiveness
for Idiopathic Hypersomnia (3 evaluations)
Side effects
Antsy Anxious mood 4 more
How many evaluations
5
Tried for
Idiopathic Hypersomnia (9) Fatigue (5)
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for Idiopathic Hypersomnia (5 evaluations)
Side effects
Chronic headaches Tension Headache 1 more
How many evaluations
10
Tried for
Idiopathic Hypersomnia (4) Fatigue (2)
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Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (4 evaluations)
Side effects
Morning nausea
How many evaluations
4
Tried for
Depressed mood (6)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (4 evaluations)
Side effects
Fatigue Mild Depression
How many evaluations
4
Tried for
Insomnia (3) Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
How many evaluations
1
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Hypomania
How many evaluations
4
Tried for
Pain (2) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (3)
Check to add this treatment to your profile
Treatment name(s)

(Advil)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
How many evaluations
1
Tried for
Pain (3)

Data from patients with Idiopathic Hypersomnia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Idiopathic Hypersomnia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 30
30s 80
40s 68
50s 40
60s 17
70+ 3

Sex

Distribution of sex

82% Female
18% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 66
20-29 years 33
30-39 years 24
40-49 years 15
50-59 years 13
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 160
Not Diagnosed 23

These charts show data from Idiopathic Hypersomnia patients who have completed their condition history
Last updated: