What is idiopathic hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

How do members experience idiopathic hypersomnia?

Top 5 symptoms reported by people with idiopathic hypersomnia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for idiopathic hypersomnia*

*Data from patients with idiopathic hypersomnia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with idiopathic hypersomnia*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Provigil)
Perceived effectiveness
for idiopathic hypersomnia (3 evaluations)
Side effects
Total evaluations
3
Tried for
idiopathic hypersomnia (3)

*Data from patients with idiopathic hypersomnia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has idiopathic hypersomnia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 37
30s 121
40s 139
50s 126
60s 64
70+ 18

Distribution of sex

Sex

Sex Proportion # of patients
Male 90
Female 415