Idiopathic Hypersomnia

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What is Idiopathic Hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

Common symptoms reported by people with Idiopathic Hypersomnia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Idiopathic Hypersomnia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
17
Tried for
Idiopathic Hypersomnia (17) Fatigue (3)
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Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
12
Tried for
Fatigue (7) Idiopathic Hypersomnia (6)
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Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
12
Tried for
Idiopathic Hypersomnia (10) Fatigue (5)
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Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
6
Tried for
Idiopathic Hypersomnia (4) Fatigue (2)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
6
Tried for
Depressed mood (5) Pain (1)
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Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (4)
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Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (2) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Vyvanse)
Type
Prescription Drug
How many have tried
3
Tried for
Fatigue (2) Idiopathic Hypersomnia (1)

Data from patients with Idiopathic Hypersomnia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Idiopathic Hypersomnia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Idiopathic Hypersomnia (9 evaluations)
Side effects
Amblyopia Anxious mood 15 more
Total evaluations
12
Tried for
Idiopathic Hypersomnia (17) Fatigue (3)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (5 evaluations)
Side effects
Anxious mood Decreased appetite 10 more
Total evaluations
10
Tried for
Fatigue (7) Idiopathic Hypersomnia (6)
Check to add this treatment to your profile
Treatment name(s)

(Ritalin)
Perceived effectiveness
for Idiopathic Hypersomnia (4 evaluations)
Side effects
Loss of appetite Antsy 3 more
Total evaluations
6
Tried for
Idiopathic Hypersomnia (10) Fatigue (5)
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for Idiopathic Hypersomnia (6 evaluations)
Side effects
Chronic headaches Tension Headache 1 more
Total evaluations
11
Tried for
Idiopathic Hypersomnia (4) Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (3 evaluations)
Side effects
Morning nausea
Total evaluations
3
Tried for
Depressed mood (5) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Vistaril)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Nausea
Total evaluations
1
Tried for
Anxious mood (4)
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Hypomania
Total evaluations
4
Tried for
Pain (2) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Advil)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Vyvanse)
Perceived effectiveness
for Idiopathic Hypersomnia (1 evaluation)
Side effects
Constipation
Total evaluations
1
Tried for
Fatigue (2) Idiopathic Hypersomnia (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Idiopathic Hypersomnia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Idiopathic Hypersomnia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 30
30s 82
40s 74
50s 44
60s 18
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 68
20-29 years 35
30-39 years 25
40-49 years 17
50-59 years 13
60-69 years 0
70+ years 0

Sex

Distribution of sex

82% Female
18% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 167
Not Diagnosed 23

These charts show data from Idiopathic Hypersomnia patients who have completed their condition history
Last updated: