Diabetes type 1

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is diabetes type 1?

Type 1 diabetes mellitus (DM), usually diagnosed in children and young adults, can occur at any age when the pancreas does not produce insulin, a hormone needed to control the body's blood sugar levels. It requires daily monitoring of blood sugar, insulin therapy, diet modification and exercise.

Common symptoms reported by people with diabetes type 1

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with diabetes type 1

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lantus)
Type
Prescription Drug
How many have tried
30
Tried for
diabetes type 1 (30)
Treatment name(s)

(Novolog)
Type
Prescription Drug
How many have tried
25
Tried for
diabetes type 1 (25)
Treatment name(s)

(Humalog)
Type
Prescription Drug
How many have tried
15
Tried for
diabetes type 1 (15)
Treatment name(s)

(Levemir FlexPen)
Type
Prescription Drug
How many have tried
12
Tried for
diabetes type 1 (12)
Treatment name(s)

(Novolog Insulin Pump)
Type
Equipment
How many have tried
8
Tried for
diabetes type 1 (8)
Treatment name(s)

(Glucophage)
Type
Prescription Drug
How many have tried
8
Tried for
diabetes type 1 (8)
Treatment name(s)

(Dexcom Continuous Glucose Monitor)
Type
Equipment
How many have tried
7
Tried for
diabetes type 1 (7)
Treatment name(s)

(Tresiba)
Type
Prescription Drug
How many have tried
7
Tried for
diabetes type 1 (7)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
Pain (5)
Treatment name(s)

(Humulin R)
Type
Prescription Drug
How many have tried
5
Tried for
diabetes type 1 (5)

Data from patients with diabetes type 1, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with diabetes type 1

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lantus)
Perceived effectiveness
for diabetes type 1 (6 evaluations)
Side effects
acidic taste in mouth reactive hypoglycemia
Total evaluations
7
Tried for
diabetes type 1 (30)
Treatment name(s)

(Novolog)
Perceived effectiveness
for diabetes type 1 (11 evaluations)
Side effects
low blood sugar (hypoglycemia) weight gain
Total evaluations
11
Tried for
diabetes type 1 (25)
Treatment name(s)

(Humalog)
Perceived effectiveness
for diabetes type 1 (8 evaluations)
Side effects
low blood sugar (hypoglycemia) headaches 1 more
Total evaluations
8
Tried for
diabetes type 1 (15)
Treatment name(s)

(Levemir FlexPen)
Perceived effectiveness
for diabetes type 1 (2 evaluations)
Side effects
low blood sugar (hypoglycemia)
Total evaluations
3
Tried for
diabetes type 1 (12)
Treatment name(s)

(Novolog Insulin Pump)
Perceived effectiveness
for diabetes type 1 (3 evaluations)
Side effects
weight gain
Total evaluations
3
Tried for
diabetes type 1 (8)
Treatment name(s)

(Glucophage)
Perceived effectiveness
for diabetes type 1 (4 evaluations)
Side effects
chronic kidney disease
Total evaluations
6
Tried for
diabetes type 1 (8)
Treatment name(s)

(Dexcom Continuous Glucose Monitor)
Perceived effectiveness
for diabetes type 1 (4 evaluations)
Side effects
skin irritation under patch
Total evaluations
4
Tried for
diabetes type 1 (7)
Treatment name(s)

(Tresiba)
Perceived effectiveness
for diabetes type 1 (2 evaluations)
Side effects
Total evaluations
2
Tried for
diabetes type 1 (7)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
Pain (5)
Treatment name(s)

(Humulin R)
Perceived effectiveness
for diabetes type 1 (2 evaluations)
Side effects
Total evaluations
2
Tried for
diabetes type 1 (5)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with diabetes type 1, who reported starting treatments within the last 5 years.
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Who has diabetes type 1 on PatientsLikeMe?


Age
Age Proportion # of patients
<20 82
20s 468
30s 627
40s 666
50s 594
60s 258
70+ 68
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 660
20-29 years 267
30-39 years 150
40-49 years 81
50-59 years 53
60-69 years 14
70+ years 2

Sex

Distribution of sex

62% Female
38% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,595
Not Diagnosed 90

These charts show data from diabetes type 1 patients who have completed their condition history
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