Progressive supranuclear palsy

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What is progressive supranuclear palsy?

Progressive supranuclear palsy is a rare neurodegenerative disorder characterized by gait and balance difficulties and loss of coordination of eye movements.

Common symptoms reported by people with progressive supranuclear palsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with progressive supranuclear palsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lunasin Duke Virtual Trial)
Type
Supplement
How many have tried
1
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
constipation (1)

Data from patients with progressive supranuclear palsy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with progressive supranuclear palsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for progressive supranuclear palsy (5 evaluations)
Side effects
burning sensation in mouth falls 1 more
Total evaluations
9
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
sleeping better
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Lunasin Duke Virtual Trial)
Perceived effectiveness
for progressive supranuclear palsy (1 evaluation)
Side effects
Total evaluations
2
Treatment name(s)
Perceived effectiveness
for constipation (2 evaluations)
Side effects
Total evaluations
2
Tried for
constipation (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with progressive supranuclear palsy, who reported starting treatments within the last 5 years.
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Who has progressive supranuclear palsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 10
40s 4
50s 23
60s 53
70+ 110
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 4
40-49 years 8
50-59 years 20
60-69 years 31
70+ years 14

Distribution of sex

Sex
Sex Proportion # of patients
Male 98
Female 104

Types
Condition Types Proportion # of patients
Corticobasal degeneration (CBD) 16
Progressive supranuclear palsy (PSP/Steele Richardson Olszewski Syndrome) 128
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 86
Not Diagnosed 20

These charts show data from PSP patients who have completed their condition history
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