Progressive supranuclear palsy

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What is progressive supranuclear palsy?

Progressive supranuclear palsy is a rare neurodegenerative disorder characterized by gait and balance difficulties and loss of coordination of eye movements.

Common symptoms reported by people with progressive supranuclear palsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for progressive supranuclear palsy

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Got a question about living with progressive supranuclear palsy? Members in the forum might have the answers.

Compare treatments taken by people with progressive supranuclear palsy

Let’s build this page together! When you share what it’s like to have progressive supranuclear palsy through your profile, those stories and data appear here too.

Got a question about living with progressive supranuclear palsy? Members in the forum might have the answers.

Who has progressive supranuclear palsy on PatientsLikeMe?

  • 1 new patients joined this month
  • 276 say PSP is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 7
40s 9
50s 15
60s 58
70+ 141
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 4
40-49 years 8
50-59 years 21
60-69 years 32
70+ years 15

Distribution of sex

Sex
Sex Proportion # of patients
Male 113
Female 119

Types
Condition Types Proportion # of patients
Corticobasal degeneration (CBD) 16
Progressive supranuclear palsy (PSP/Steele Richardson Olszewski Syndrome) 138
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 89
Not Diagnosed 20

These charts show data from PSP patients who have completed their condition history
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