Progressive supranuclear palsy

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What is progressive supranuclear palsy?

Progressive supranuclear palsy is a rare neurodegenerative disorder characterized by gait and balance difficulties and loss of coordination of eye movements.

Common symptoms reported by people with progressive supranuclear palsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with progressive supranuclear palsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Lunasin Duke Virtual Trial)
Type
Supplement
How many have tried
1
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
constipation (1)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
1

Data from patients with progressive supranuclear palsy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with progressive supranuclear palsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for progressive supranuclear palsy (6 evaluations)
Side effects
burning sensation in mouth falls 2 more
Total evaluations
10
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
sleeping better
Total evaluations
3
Tried for
Pain (1)
Treatment name(s)

(Lunasin Duke Virtual Trial)
Perceived effectiveness
for progressive supranuclear palsy (1 evaluation)
Side effects
Total evaluations
2
Treatment name(s)
Perceived effectiveness
for constipation (2 evaluations)
Side effects
Total evaluations
2
Tried for
constipation (1)
Treatment name(s)

(Leg brace)
Perceived effectiveness
for progressive supranuclear palsy (1 evaluation)
Side effects
Pain
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with progressive supranuclear palsy, who reported starting treatments within the last 5 years.
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Who has progressive supranuclear palsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 9
40s 3
50s 24
60s 51
70+ 89
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 4
40-49 years 8
50-59 years 20
60-69 years 30
70+ years 14

Sex

Distribution of sex

51% Female
49% Male

Types
Condition Types Proportion # of patients
Corticobasal degeneration (CBD) 16
Progressive supranuclear palsy (PSP/Steele Richardson Olszewski Syndrome) 112
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 84
Not Diagnosed 19

These charts show data from PSP patients who have completed their condition history
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