Diabetes insipidus

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What is diabetes insipidus?

Diabetes insipidus, also called central diabetes insipidus, is caused by decreased secretion of antidiuretic hormone from the pituitary gland and is characterized by excessive volumes of urine that is diluted in appearance and excessive thirst.

Common symptoms reported by people with diabetes insipidus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with diabetes insipidus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(DDAVP)
Type
Prescription Drug
How many have tried
5
Tried for
diabetes insipidus (5)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Tranxene)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Welchol)
Type
Prescription Drug
How many have tried
1
Tried for
diabetes insipidus (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
diabetes insipidus (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with diabetes insipidus, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with diabetes insipidus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(DDAVP)
Perceived effectiveness
for diabetes insipidus (2 evaluations)
Side effects
Total evaluations
2
Tried for
diabetes insipidus (5)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
slowed thinking
Total evaluations
1
Tried for
anxious mood (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
swollen feet
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
Pain (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Tranxene)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Welchol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
diabetes insipidus (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)
Perceived effectiveness
for diabetes insipidus (1 evaluation)
Side effects
low blood sugar (hypoglycemia) yeast infection (candida)
Total evaluations
1
Tried for
diabetes insipidus (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with diabetes insipidus, who reported starting treatments within the last 5 years.
Last updated:

Who has diabetes insipidus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 9
20s 25
30s 45
40s 69
50s 115
60s 90
70+ 32
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 22
20-29 years 16
30-39 years 29
40-49 years 32
50-59 years 18
60-69 years 4
70+ years 0

Sex

Distribution of sex

61% Female
39% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 186
Not Diagnosed 21

These charts show data from diabetes insipidus patients who have completed their condition history
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