Bile acid malabsorption syndrome

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What is bile acid malabsorption syndrome?

Patients with bile acid malabsorption typically present with chronic, watery diarrhea due to a larger amount of bile acids being spilled into the colon, where the acids stimulate electrolyte and water secretion, which results in loose to watery stools.

Common symptoms reported by people with bile acid malabsorption syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with bile acid malabsorption syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Questran)
Type
Prescription Drug
How many have tried
2
Type
Lifestyle Modification
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Ultrasound of kidneys (renal))
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with bile acid malabsorption syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with bile acid malabsorption syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Questran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
high feeling
Total evaluations
2
Tried for
Pain (1)
Treatment name(s)

(Lamictal)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Seroquel)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
dry eyes dry mouth 1 more
Total evaluations
2
Tried for
Pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Ultrasound of kidneys (renal))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with bile acid malabsorption syndrome, who reported starting treatments within the last 5 years.
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Who has bile acid malabsorption syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 4
30s 6
40s 14
50s 12
60s 7
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 5
30-39 years 6
40-49 years 1
50-59 years 3
60-69 years 0
70+ years 0

Sex

Distribution of sex

80% Female
20% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 23
Not Diagnosed 3

These charts show data from bile acid malabsorption syndrome patients who have completed their condition history
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