Irritable bowel syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is irritable bowel syndrome?

Irritable bowel syndrome is a chronic noninflammatory disease characterized by abdominal pain, altered bowel habits consisting of diarrhea or constipation or both, and no detectable pathologic change in the intestinal tissue.

Common symptoms reported by people with irritable bowel syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with irritable bowel syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Bentyl)
Type
Prescription Drug
How many have tried
69
Tried for
irritable bowel syndrome (69) diarrhea (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
69
Tried for
pain (62) anxious mood (3)
3 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
62
Tried for
pain (62)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
45
Tried for
pain (39) irritable bowel syndrome (7)
3 more
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
41
Tried for
depressed mood (38) pain (4)
2 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
38
Tried for
pain (37) anxious mood (1)
Treatment name(s)

(Linzess)
Type
Prescription Drug
How many have tried
38
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
35
Tried for
anxious mood (35) stress (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
33
Tried for
pain (32) fatigue (1)
Treatment name(s)

(Imodium)
Type
Over the Counter Drug
How many have tried
33
Tried for
irritable bowel syndrome (31) diarrhea (7)
1 more

Data from patients with irritable bowel syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with irritable bowel syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Bentyl)
Perceived effectiveness
for irritable bowel syndrome (37 evaluations)
Side effects
abdominal bloating abdominal pain 9 more
Total evaluations
39
Tried for
irritable bowel syndrome (69) diarrhea (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (36 evaluations)
Side effects
drowsiness dizziness 24 more
Total evaluations
44
Tried for
pain (62) anxious mood (3)
3 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (34 evaluations)
Side effects
drowsiness chronic constipation 20 more
Total evaluations
37
Tried for
pain (62)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (35 evaluations)
Side effects
dry mouth rapid weight gain 11 more
Total evaluations
48
Tried for
pain (39) irritable bowel syndrome (7)
3 more
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (28 evaluations)
Side effects
nausea dizziness 25 more
Total evaluations
36
Tried for
depressed mood (38) pain (4)
2 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (17 evaluations)
Side effects
constipation drowsiness 5 more
Total evaluations
18
Tried for
pain (37) anxious mood (1)
Treatment name(s)

(Linzess)
Perceived effectiveness
for irritable bowel syndrome (19 evaluations)
Side effects
diarrhea abdominal bloating 6 more
Total evaluations
24
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (17 evaluations)
Side effects
tiredness drowsiness 5 more
Total evaluations
19
Tried for
anxious mood (35) stress (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (18 evaluations)
Side effects
drowsiness constipation 10 more
Total evaluations
20
Tried for
pain (32) fatigue (1)
Treatment name(s)

(Imodium)
Perceived effectiveness
for irritable bowel syndrome (12 evaluations)
Side effects
constipation fear of constipation (coprastasophobia)
Total evaluations
15
Tried for
irritable bowel syndrome (31) diarrhea (7)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with irritable bowel syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has irritable bowel syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 35
20s 479
30s 1,102
40s 1,630
50s 1,635
60s 843
70+ 163
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1,216
20-29 years 947
30-39 years 797
40-49 years 443
50-59 years 174
60-69 years 20
70+ years 9

Sex

Distribution of sex

90% Female
10% Male

Types
Condition Types Proportion # of patients
IBS-C (constipation predominant) 79
IBS-D (diarrhea predominant) 104
IBS-M (mixed diarrhea and constipation) 123
IBS-U (unsubtyped) 15
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3,937
Not Diagnosed 444

These charts show data from IBS patients who have completed their condition history
Last updated: