Babesiosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is babesiosis?

Babesiosis is a vector-borne illness usually transmitted by Ixodes ticks.

Common symptoms reported by people with babesiosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with babesiosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Zithromax)
Type
Prescription Drug
How many have tried
4
Tried for
babesiosis (4)
Treatment name(s)

(Mepron)
Type
Prescription Drug
How many have tried
3
Tried for
babesiosis (3)
Treatment name(s)
Type
Over the Counter Drug
How many have tried
2
Tried for
babesiosis (2)
Treatment name(s)
Type
Prescription Drug
How many have tried
2
Tried for
babesiosis (2)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
2
Tried for
Pain (2) Depressed mood (1)
1 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2) Fatigue (1)
Treatment name(s)

(Valerian Root)
Type
Supplement
How many have tried
2
Tried for
Anxious mood (2) Insomnia (1)
Treatment name(s)

(Methyl B-12 Prescription)
Type
Supplement
How many have tried
2
Tried for
Fatigue (2)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
Fatigue (1)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
Pain (1)

Data from patients with babesiosis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with babesiosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Zithromax)
Perceived effectiveness
for babesiosis (3 evaluations)
Side effects
Fatigue Nerve pain (neuralgia) 1 more
Total evaluations
3
Tried for
babesiosis (4)
Treatment name(s)

(Mepron)
Perceived effectiveness
for babesiosis (1 evaluation)
Side effects
Tooth discoloration
Total evaluations
1
Tried for
babesiosis (3)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
babesiosis (2)
Treatment name(s)
Perceived effectiveness
for babesiosis (2 evaluations)
Side effects
Fast heart rate (tachycardia)
Total evaluations
2
Tried for
babesiosis (2)
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (2) Depressed mood (1)
1 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (2) Fatigue (1)
Treatment name(s)

(Valerian Root)
Perceived effectiveness
for Anxious mood (2 evaluations)
Side effects
Difficult to wake up next morning Spasms in entire body
Total evaluations
3
Tried for
Anxious mood (2) Insomnia (1)
Treatment name(s)

(Methyl B-12 Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Fatigue (2)
Treatment name(s)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
Fatigue (1)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Yeast die-off (Herxheimer reaction)
Total evaluations
2
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with babesiosis, who reported starting treatments within the last 5 years.
Last updated:

Who has babesiosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 13
30s 12
40s 14
50s 9
60s 11
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 6
30-39 years 4
40-49 years 1
50-59 years 2
60-69 years 1
70+ years 0

Sex

Distribution of sex

75% Female
25% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 28
Not Diagnosed 3

These charts show data from babesiosis patients who have completed their condition history
Last updated: