Hepatitis C

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is hepatitis C?

Hepatitis C is a viral disease that leads to inflammation of the liver caused by the hepatitis C virus transmitted primarily by contaminated blood and is often associated with transfusion and IV drug abuse. However, in some case the source of hepatitis C is unknown.

Common symptoms reported by people with hepatitis C

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hepatitis C

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Harvoni)
Type
Prescription Drug
How many have tried
16
Tried for
hepatitis C (16)
Treatment name(s)

(Sovaldi)
Type
Prescription Drug
How many have tried
8
Tried for
hepatitis C (8)
Treatment name(s)
Type
Prescription Drug
How many have tried
4
Tried for
hepatitis C (4)
Treatment name(s)

(Mavyret)
Type
Prescription Drug
How many have tried
3
Tried for
hepatitis C (3)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(5 HTP TR)
Type
Supplement
How many have tried
1
Tried for
depressed mood (1)

Data from patients with hepatitis C, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hepatitis C

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Harvoni)
Perceived effectiveness
for hepatitis C (15 evaluations)
Side effects
headaches breathing difficulty 8 more
Total evaluations
15
Tried for
hepatitis C (16)
Treatment name(s)

(Sovaldi)
Perceived effectiveness
for hepatitis C (4 evaluations)
Side effects
headaches
Total evaluations
4
Tried for
hepatitis C (8)
Treatment name(s)
Perceived effectiveness
for hepatitis C (3 evaluations)
Side effects
bowel urgency crying 4 more
Total evaluations
3
Tried for
hepatitis C (4)
Treatment name(s)

(Mavyret)
Perceived effectiveness
for hepatitis C (2 evaluations)
Side effects
fatigue nausea 2 more
Total evaluations
2
Tried for
hepatitis C (3)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
sluggishness
Total evaluations
1
Tried for
depressed mood (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
sluggishness
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (2)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Advil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(5 HTP TR)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hepatitis C, who reported starting treatments within the last 5 years.
Last updated:

Who has hepatitis C on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 35
30s 100
40s 128
50s 218
60s 280
70+ 53
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 22
20-29 years 53
30-39 years 60
40-49 years 73
50-59 years 26
60-69 years 5
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 323
Female 492

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 506
Not Diagnosed 14

These charts show data from hepatitis C patients who have completed their condition history
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