Transverse myelitis

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What is transverse myelitis?

Transverse myelitis is a neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. Myelitis refers to inflammation of the spinal cord; transverse simply describes the position of the inflammation, that is, across the width of the spinal cord.

Common symptoms reported by people with transverse myelitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with transverse myelitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Procedures
How many have tried
3
Tried for
transverse myelitis (3)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (2) transverse myelitis (1)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
2
Tried for
Fatigue (2)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2) transverse myelitis (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2
Tried for
transverse myelitis (2)
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
2
Tried for
transverse myelitis (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (1) Pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
2
Tried for
transverse myelitis (2)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2) transverse myelitis (1)

Data from patients with transverse myelitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with transverse myelitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for transverse myelitis (1 evaluation)
Side effects
Hospitalization
Total evaluations
1
Tried for
transverse myelitis (3)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (2) transverse myelitis (1)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Fatigue (4 evaluations)
Side effects
Sweating
Total evaluations
4
Tried for
Fatigue (2)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Dry mouth Excessive daytime sleepiness (somnolence)
Total evaluations
1
Tried for
Pain (2) transverse myelitis (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
transverse myelitis (2)
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for transverse myelitis (5 evaluations)
Side effects
Nausea Very tired right after treatment
Total evaluations
5
Tried for
transverse myelitis (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Brain zaps
Total evaluations
1
Tried for
Depressed mood (1) Pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Constipation
Total evaluations
2
Tried for
Pain (2)
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for transverse myelitis (1 evaluation)
Side effects
Insomnia Metallic taste in mouth
Total evaluations
1
Tried for
transverse myelitis (2)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Excessive daytime sleepiness (somnolence) Weight gain
Total evaluations
2
Tried for
Pain (2) transverse myelitis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with transverse myelitis, who reported starting treatments within the last 5 years.
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Who has transverse myelitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 9
30s 44
40s 54
50s 59
60s 48
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 20
30-39 years 27
40-49 years 26
50-59 years 22
60-69 years 3
70+ years 1

Sex

Distribution of sex

79% Female
21% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 136
Not Diagnosed 9

These charts show data from transverse myelitis patients who have completed their condition history
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