Chronic headache disorder

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What is chronic headache disorder?

Chronic headache, or chronic daily headache (CDH), is classified as experiencing fifteen or more days with a headache per month.

Common symptoms reported by people with chronic headache disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic headache disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Tried for
pain (4) chronic headache disorder (2)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
5
Tried for
chronic headache disorder (3) pain (3)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (3) anxious mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4) pain (1)
Treatment name(s)

(Botox)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
3
Tried for
fatigue (3)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
3
Tried for
chronic headache disorder (2) pain (2)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)

Data from patients with chronic headache disorder, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic headache disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
drowsiness nausea
Total evaluations
5
Tried for
pain (4) chronic headache disorder (2)
Treatment name(s)

(Advil)
Perceived effectiveness
for chronic headache disorder (1 evaluation)
Side effects
acid reflux elevated blood pressure 2 more
Total evaluations
2
Tried for
chronic headache disorder (3) pain (3)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
dizziness and feeling faint heat intolerance
Total evaluations
1
Tried for
depressed mood (3) anxious mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
depressed mood (4) pain (1)
Treatment name(s)

(Botox)
Perceived effectiveness
for chronic headache disorder (4 evaluations)
Side effects
numbness in face
Total evaluations
4
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
cognitive confusion daytime sleepiness 2 more
Total evaluations
3
Tried for
anxious mood (3)
Treatment name(s)

(Provigil)
Perceived effectiveness
for fatigue (4 evaluations)
Side effects
blurry vision decreased appetite 8 more
Total evaluations
4
Tried for
fatigue (3)
Treatment name(s)

(Pamelor)
Perceived effectiveness
for chronic headache disorder (4 evaluations)
Side effects
confusion excessive sweating 8 more
Total evaluations
5
Tried for
chronic headache disorder (2) pain (2)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (2 evaluations)
Side effects
chronic headache disorder dizziness 1 more
Total evaluations
2
Tried for
pain (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic headache disorder, who reported starting treatments within the last 5 years.
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Who has chronic headache disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 62
30s 109
40s 131
50s 121
60s 56
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 95
20-29 years 70
30-39 years 54
40-49 years 33
50-59 years 11
60-69 years 2
70+ years 1

Sex

Distribution of sex

82% Female
18% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 239
Not Diagnosed 75

These charts show data from chronic headache disorder patients who have completed their condition history
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