Chronic headache disorder

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What is chronic headache disorder?

Chronic headache, or chronic daily headache (CDH), is classified as experiencing fifteen or more days with a headache per month.

Common symptoms reported by people with chronic headache disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with chronic headache disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Tried for
Pain (5) chronic headache disorder (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
5
Tried for
Insomnia (4) Depressed mood (1)
1 more
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
5
Tried for
chronic headache disorder (3) Pain (3)
Treatment name(s)

(Botox)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (4)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (4)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
4
Tried for
Insomnia (4)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
4
Tried for
Depressed mood (4) Pain (1)

Data from patients with chronic headache disorder, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic headache disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (6 evaluations)
Side effects
Drowsiness Nausea
Total evaluations
6
Tried for
Pain (5) chronic headache disorder (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (16 evaluations)
Side effects
Dry mouth Mood changes 1 more
Total evaluations
16
Tried for
Insomnia (4) Depressed mood (1)
1 more
Treatment name(s)

(Advil)
Perceived effectiveness
for chronic headache disorder (1 evaluation)
Side effects
Acid reflux Elevated blood pressure 1 more
Total evaluations
1
Tried for
chronic headache disorder (3) Pain (3)
Treatment name(s)

(Botox)
Perceived effectiveness
for chronic headache disorder (4 evaluations)
Side effects
Numbness in face
Total evaluations
4
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (3 evaluations)
Side effects
Cognitive confusion Daytime sleepiness 2 more
Total evaluations
3
Tried for
Anxious mood (4)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (4)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
Pain (4)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Blurry vision Constant hunger 7 more
Total evaluations
3
Tried for
Pain (4)
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Total evaluations
1
Tried for
Insomnia (4)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
Depressed mood (4) Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic headache disorder, who reported starting treatments within the last 5 years.
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Who has chronic headache disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 63
30s 105
40s 120
50s 105
60s 44
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 91
20-29 years 69
30-39 years 55
40-49 years 33
50-59 years 11
60-69 years 2
70+ years 1

Sex

Distribution of sex

83% Female
17% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 237
Not Diagnosed 74

These charts show data from chronic headache disorder patients who have completed their condition history
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