What is stiff person syndrome?

Stiff person syndrome is an uncommon disorder characterized by progressive muscle stiffness, rigidity, and spasm involving the axial muscles, resulting in severely impaired ambulation.

How do members experience stiff person syndrome?

Top 5 symptoms reported by people with stiff person syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for stiff person syndrome*

Who has stiff person syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 3
30s 10
40s 30
50s 38
60s 39
70+ 25

Distribution of sex

Sex

Sex Proportion # of patients
Male 44
Female 104