Optic Neuritis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Optic Neuritis?

Optic neuritis is the inflammation of the optic nerve that may cause a complete or partial loss of vision. It is classified as either intraocular, affecting the part of the nerve within the eyeball, or retrobulbar, affecting the portion behind the eyeball.

What is it like to have Optic Neuritis?

Common symptoms How bad it is What people are taking for it
Tramadol, Gabapentin, Pregabalin
Trazodone, Quetiapine, Amitriptyline
Methylphenidate, Handicap/Disability Parking Permit, Modafinil
Citalopram, Bupropion, Duloxetine
Clonazepam, Lorazepam, Diazepam

What do patients take to treat Optic Neuritis and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Wockhardt Methylprednisolone, Urbason solubile, Advantan, Solu-Medrol Infusion)

9

(Pulmison, Pronizon, Deltasone, Encorton)

6

These charts show data from Optic neuritis patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Optic Neuritis on PatientsLikeMe?

  • 209 patients have this condition
  • 2 new patients joined this month
  • 16 say Optic neuritis is their primary condition

Age
Age Proportion # of patients
<20 3
20s 27
30s 43
40s 73
50s 35
60s 10
70+ 1

Gender

Distribution of females vs. males

87% Females
13% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 42
30-39 years 38
40-49 years 36
50-59 years 5
60-69 years 1
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 164
Not Diagnosed 3

These charts show data from Optic neuritis patients who have completed their condition history
Last updated: