Complex regional pain syndrome type II

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What is complex regional pain syndrome type II?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. Type II, formerly known as causalgia, is similar to Type I but involves overt damage to a peripheral nerve.

Common symptoms reported by people with complex regional pain syndrome type II

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with complex regional pain syndrome type II

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
19
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
14
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
12
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
12
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
11
Treatment name(s)

(Lidocaine Viscous)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
7
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)

Data from patients with complex regional pain syndrome type II, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with complex regional pain syndrome type II

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for complex regional pain syndrome type II (14 evaluations)
Side effects
dizziness agitation 11 more
Total evaluations
15
Treatment name(s)

(Lyrica)
Perceived effectiveness
for complex regional pain syndrome type II (13 evaluations)
Side effects
drowsiness confusion 9 more
Total evaluations
15
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for complex regional pain syndrome type II (1 evaluation)
Side effects
back pain increased pain
Total evaluations
2
Treatment name(s)

(Ultram)
Perceived effectiveness
for complex regional pain syndrome type II (4 evaluations)
Side effects
an overall crappy feeling all the time drowsiness 3 more
Total evaluations
4
Treatment name(s)

(Elavil)
Perceived effectiveness
for complex regional pain syndrome type II (3 evaluations)
Side effects
drowsiness sleep walking
Total evaluations
5
Treatment name(s)

(Lidocaine Viscous)
Perceived effectiveness
for complex regional pain syndrome type II (4 evaluations)
Side effects
allergic reaction to patch adhesive
Total evaluations
4
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for complex regional pain syndrome type II (7 evaluations)
Side effects
confusion difficulty speaking (dysarthria) 6 more
Total evaluations
8
Treatment name(s)

(Deltasone)
Perceived effectiveness
for complex regional pain syndrome type II (4 evaluations)
Side effects
sweating muscle soreness
Total evaluations
5
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
diarrhea nausea and vomiting
Total evaluations
5
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
drowsiness
Total evaluations
1
Tried for
anxious mood (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with complex regional pain syndrome type II, who reported starting treatments within the last 5 years.
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Who has complex regional pain syndrome type II on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 17
30s 52
40s 122
50s 169
60s 56
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 37
30-39 years 55
40-49 years 69
50-59 years 25
60-69 years 6
70+ years 1

Sex

Distribution of sex

87% Female
13% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 243
Not Diagnosed 13

These charts show data from CRPS type II patients who have completed their condition history
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