Complex regional pain syndrome type II

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What is complex regional pain syndrome type II?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. Type II, formerly known as causalgia, is similar to Type I but involves overt damage to a peripheral nerve.

Common symptoms reported by people with complex regional pain syndrome type II

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with complex regional pain syndrome type II

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
16
Treatment name(s)

(Lidocaine Viscous)
Type
Prescription Drug
How many have tried
10
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
10
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
7
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
7
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
5
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4) pain (2)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (3) depressed mood (1)

Data from patients with complex regional pain syndrome type II, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with complex regional pain syndrome type II

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for complex regional pain syndrome type II (12 evaluations)
Side effects
dizziness agitation 13 more
Total evaluations
14
Treatment name(s)

(Lidocaine Viscous)
Perceived effectiveness
for complex regional pain syndrome type II (8 evaluations)
Side effects
allergic reaction to patch adhesive
Total evaluations
8
Treatment name(s)

(Ultram)
Perceived effectiveness
for complex regional pain syndrome type II (4 evaluations)
Side effects
an overall crappy feeling all the time headaches
Total evaluations
4
Treatment name(s)

(Lyrica)
Perceived effectiveness
for complex regional pain syndrome type II (3 evaluations)
Side effects
drowsiness confusion 6 more
Total evaluations
5
Treatment name(s)

(Elavil)
Perceived effectiveness
for complex regional pain syndrome type II (2 evaluations)
Side effects
drowsiness
Total evaluations
4
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for complex regional pain syndrome type II (1 evaluation)
Side effects
back pain increased pain
Total evaluations
2
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for complex regional pain syndrome type II (5 evaluations)
Side effects
confusion difficulty speaking (dysarthria) 5 more
Total evaluations
5
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
drowsiness
Total evaluations
1
Tried for
anxious mood (4)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
Total evaluations
4
Tried for
depressed mood (4) pain (2)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
dizziness drowsiness 4 more
Total evaluations
3
Tried for
anxious mood (3) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with complex regional pain syndrome type II, who reported starting treatments within the last 5 years.
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Who has complex regional pain syndrome type II on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 26
30s 61
40s 123
50s 202
60s 79
70+ 11
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 40
30-39 years 58
40-49 years 72
50-59 years 26
60-69 years 7
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 75
Female 439

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 265
Not Diagnosed 13

These charts show data from CRPS type II patients who have completed their condition history
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