Intersex

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is intersex?

Intersex is a group of conditions where there is a discrepancy between the external genitals and the internal genitals (the testes and ovaries). This is usually understood to be congenital, involving chromosomal, morphologic, genital and/or gonadal anomalies.

Common symptoms reported by people with intersex

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with intersex

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with intersex, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with intersex

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Provigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with intersex, who reported starting treatments within the last 5 years.
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Who has intersex on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 4
40s 0
50s 2
60s 2
70+ 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 2

These charts show data from intersex patients who have completed their condition history
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