Hypermobility syndrome

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What is hypermobility syndrome?

Hypermobility describes joints that stretch farther than is normal. Hypermobility syndrome is used to describe a disorder in which musculoskeletal pain and generalized joint hypermobility occur together.

Common symptoms reported by people with hypermobility syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hypermobility syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
13
Tried for
pain (12) hypermobility syndrome (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9) fatigue (1)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9) hypermobility syndrome (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
7
Tried for
pain (4) depressed mood (3)
2 more
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (6) hypermobility syndrome (1)
1 more
Treatment name(s)

(BuTrans Transdermal Patch)
Type
Prescription Drug
How many have tried
6
Tried for
pain (6)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
6
Tried for
hypermobility syndrome (3) pain (3)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
5
Tried for
pain (5) stress (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5)

Data from patients with hypermobility syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hypermobility syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (7 evaluations)
Side effects
dizziness and feeling faint nausea 8 more
Total evaluations
7
Tried for
pain (12) hypermobility syndrome (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
pain (9)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (6 evaluations)
Side effects
abdominal bloating abdominal pain 10 more
Total evaluations
5
Tried for
pain (9) fatigue (1)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
for pain (7 evaluations)
Side effects
abdominal bloating heart palpitations 2 more
Total evaluations
7
Tried for
pain (9) hypermobility syndrome (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (3 evaluations)
Side effects
dry mouth increased sleepiness 1 more
Total evaluations
5
Tried for
pain (4) depressed mood (3)
2 more
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
dizziness anxious mood 7 more
Total evaluations
6
Tried for
depressed mood (6) hypermobility syndrome (1)
1 more
Treatment name(s)

(BuTrans Transdermal Patch)
Perceived effectiveness
for pain (4 evaluations)
Side effects
drowsiness sedation
Total evaluations
4
Tried for
pain (6)
Treatment name(s)

(Leg brace)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hypermobility syndrome (3) pain (3)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
pain (5) stress (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (5 evaluations)
Side effects
constipation drowsiness
Total evaluations
5
Tried for
pain (5)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hypermobility syndrome, who reported starting treatments within the last 5 years.
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Who has hypermobility syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 15
20s 121
30s 177
40s 173
50s 112
60s 26
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 316
20-29 years 48
30-39 years 26
40-49 years 15
50-59 years 3
60-69 years 0
70+ years 0

Sex

Distribution of sex

94% Female
6% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 459
Not Diagnosed 38

These charts show data from hypermobility syndrome patients who have completed their condition history
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