Hypermobility syndrome

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What is hypermobility syndrome?

Hypermobility describes joints that stretch farther than is normal. Hypermobility syndrome is used to describe a disorder in which musculoskeletal pain and generalized joint hypermobility occur together.

Common symptoms reported by people with hypermobility syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hypermobility syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
9
Tried for
depressed mood (8) pain (2)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Tried for
pain (8) anxious mood (1)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
8
Tried for
hypermobility syndrome (5) pain (3)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7) hypermobility syndrome (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
5
Tried for
pain (4) depressed mood (2)
1 more
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
5
Tried for
pain (5) anxious mood (3)
1 more

Data from patients with hypermobility syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hypermobility syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (6 evaluations)
Side effects
dizziness anxious mood 7 more
Total evaluations
9
Tried for
depressed mood (8) pain (2)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
burning sensation confusion 5 more
Total evaluations
3
Tried for
pain (8) anxious mood (1)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (5 evaluations)
Side effects
anxiety and frustration chronic constipation 5 more
Total evaluations
5
Tried for
pain (9)
Treatment name(s)

(Leg brace)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hypermobility syndrome (5) pain (3)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
pain (7)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
for pain (6 evaluations)
Side effects
heart palpitations stomach problems 1 more
Total evaluations
6
Tried for
pain (7) hypermobility syndrome (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (3 evaluations)
Side effects
dry mouth increased sleepiness 1 more
Total evaluations
5
Tried for
pain (4) depressed mood (2)
1 more
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (6 evaluations)
Side effects
drowsiness sedation
Total evaluations
6
Tried for
pain (5)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
shakiness
Total evaluations
3
Tried for
depressed mood (5)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for pain (7 evaluations)
Side effects
Total evaluations
7
Tried for
pain (5) anxious mood (3)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hypermobility syndrome, who reported starting treatments within the last 5 years.
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Who has hypermobility syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 13
20s 123
30s 182
40s 181
50s 119
60s 29
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 320
20-29 years 49
30-39 years 26
40-49 years 15
50-59 years 3
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 36
Female 616

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 484
Not Diagnosed 39

These charts show data from hypermobility syndrome patients who have completed their condition history
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