What is nemaline myopathy?

Nemaline myopathy, a genetic disorder that primarily affects skeletal muscles, causing muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face, neck, and limbs.

How do members experience nemaline myopathy?

Top 5 symptoms reported by people with nemaline myopathy*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for nemaline myopathy*

Who has nemaline myopathy on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 1
30s 2
40s 1
50s 2
60s 2
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 5
Female 8