Cluster headaches

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What is cluster headaches?

A primary headache disorder characterized by severe one-sided pain in and around the eyes and/or temples. They can last from 15 minutes to many hours occurring 1 to 8 times a day. They are often associated with conjunctivitis, teary eyes, nasal congestion, facial sweating, and eyelid edema.

Common symptoms reported by people with cluster headaches

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with cluster headaches

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
46
Tried for
cluster headaches (46) anxious mood (1)
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
45
Tried for
cluster headaches (45)
Treatment name(s)

(Verapamil ER)
Type
Prescription Drug
How many have tried
40
Tried for
cluster headaches (40)
Treatment name(s)

(Lithium Carbonate ER)
Type
Prescription Drug
How many have tried
13
Tried for
cluster headaches (13)
Treatment name(s)
Type
Prescription Drug
How many have tried
13
Tried for
cluster headaches (13)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
10
Tried for
cluster headaches (10)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Tried for
pain (7) cluster headaches (2)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
8
Tried for
depressed mood (8)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
7
Tried for
pain (5) anxious mood (1)
1 more
Treatment name(s)

(Nature's Bounty Melatonin)
Type
Supplement
How many have tried
7
Tried for
cluster headaches (7)

Data from patients with cluster headaches, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with cluster headaches

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for cluster headaches (30 evaluations)
Side effects
weight loss memory problems 29 more
Total evaluations
31
Tried for
cluster headaches (46) anxious mood (1)
Treatment name(s)

(Imitrex)
Perceived effectiveness
for cluster headaches (21 evaluations)
Side effects
bad taste in mouth burning sensation 14 more
Total evaluations
22
Tried for
cluster headaches (45)
Treatment name(s)

(Verapamil ER)
Perceived effectiveness
for cluster headaches (22 evaluations)
Side effects
constipation fatigue 11 more
Total evaluations
22
Tried for
cluster headaches (40)
Treatment name(s)

(Lithium Carbonate ER)
Perceived effectiveness
for cluster headaches (11 evaluations)
Side effects
tremor in hands acid reflux 13 more
Total evaluations
13
Tried for
cluster headaches (13)
Treatment name(s)
Perceived effectiveness
for cluster headaches (10 evaluations)
Side effects
Total evaluations
10
Tried for
cluster headaches (13)
Treatment name(s)

(Depakote)
Perceived effectiveness
for cluster headaches (2 evaluations)
Side effects
blood in stool dehydration 6 more
Total evaluations
4
Tried for
cluster headaches (10)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
fatigue burning sensation 2 more
Total evaluations
4
Tried for
pain (7) cluster headaches (2)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
dizziness migraine headaches 2 more
Total evaluations
3
Tried for
depressed mood (8)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
crying easily lethargy 2 more
Total evaluations
2
Tried for
pain (5) anxious mood (1)
1 more
Treatment name(s)

(Nature's Bounty Melatonin)
Perceived effectiveness
for cluster headaches (5 evaluations)
Side effects
drowsiness migraine with aura
Total evaluations
5
Tried for
cluster headaches (7)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cluster headaches, who reported starting treatments within the last 5 years.
Last updated:

Who has cluster headaches on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 90
30s 263
40s 395
50s 297
60s 116
70+ 19
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 198
20-29 years 178
30-39 years 100
40-49 years 80
50-59 years 23
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 367
Female 824

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 616
Not Diagnosed 98

These charts show data from cluster headaches patients who have completed their condition history
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