Cluster headaches

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What is cluster headaches?

A primary headache disorder characterized by severe one-sided pain in and around the eyes and/or temples. They can last from 15 minutes to many hours occurring 1 to 8 times a day. They are often associated with conjunctivitis, teary eyes, nasal congestion, facial sweating, and eyelid edema.

Common symptoms reported by people with cluster headaches

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with cluster headaches

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
51
Tried for
cluster headaches (51)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
50
Tried for
cluster headaches (50) anxious mood (1)
1 more
Treatment name(s)

(Verapamil ER)
Type
Prescription Drug
How many have tried
46
Tried for
cluster headaches (46)
Treatment name(s)

(Lithium Carbonate ER)
Type
Prescription Drug
How many have tried
16
Tried for
cluster headaches (16)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
12
Tried for
cluster headaches (12)
Treatment name(s)

(Homozon Oxygen Therapy)
Type
Prescription Drug
How many have tried
12
Tried for
cluster headaches (12)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
11
Tried for
Pain (9) cluster headaches (2)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
11
Tried for
depressed mood (11)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
9
Tried for
Pain (5) cluster headaches (4)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
8
Tried for
Pain (8)

Data from patients with cluster headaches, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with cluster headaches

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Imitrex)
Perceived effectiveness
for cluster headaches (27 evaluations)
Side effects
bad taste in mouth burning sensation 22 more
Total evaluations
28
Tried for
cluster headaches (51)
Treatment name(s)

(Topamax)
Perceived effectiveness
for cluster headaches (28 evaluations)
Side effects
weight loss anxious mood 28 more
Total evaluations
30
Tried for
cluster headaches (49) anxious mood (1)
1 more
Treatment name(s)

(Verapamil ER)
Perceived effectiveness
for cluster headaches (26 evaluations)
Side effects
constipation fatigue 12 more
Total evaluations
26
Tried for
cluster headaches (46)
Treatment name(s)

(Lithium Carbonate ER)
Perceived effectiveness
for cluster headaches (14 evaluations)
Side effects
tremor in hands dizziness 19 more
Total evaluations
17
Tried for
cluster headaches (16)
Treatment name(s)

(Depakote)
Perceived effectiveness
for cluster headaches (3 evaluations)
Side effects
blood in stool dehydration 6 more
Total evaluations
5
Tried for
cluster headaches (12)
Treatment name(s)

(Homozon Oxygen Therapy)
Perceived effectiveness
for cluster headaches (10 evaluations)
Side effects
Total evaluations
10
Tried for
cluster headaches (12)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
fatigue tension headaches 1 more
Total evaluations
4
Tried for
Pain (9) cluster headaches (2)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
dizziness migraine headaches 3 more
Total evaluations
5
Tried for
depressed mood (11)
Treatment name(s)

(Elavil)
Perceived effectiveness
for cluster headaches (4 evaluations)
Side effects
crying easily lethargy 3 more
Total evaluations
6
Tried for
cluster headaches (4) Pain (4)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
constipation
Total evaluations
4
Tried for
Pain (7)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cluster headaches, who reported starting treatments within the last 5 years.
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Who has cluster headaches on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 98
30s 261
40s 364
50s 264
60s 100
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 198
20-29 years 168
30-39 years 99
40-49 years 80
50-59 years 23
60-69 years 0
70+ years 1

Sex

Distribution of sex

69% Female
31% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 572
Not Diagnosed 100

These charts show data from cluster headaches patients who have completed their condition history
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