Complex regional pain syndrome type I

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What is complex regional pain syndrome type I?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. CRPS Type I, formerly known as reflex sympathetic dystrophy, Sudeck's atrophy, reflex neurovascular dystrophy or algoneurodystrophy, does not have nerve involvement.

Common symptoms reported by people with complex regional pain syndrome type I

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with complex regional pain syndrome type I

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
15
Tried for
complex regional pain syndrome type I (14) pain (9)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
14
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
12
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
6
Tried for
complex regional pain syndrome type I (4) pain (2)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Lidocaine Viscous)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
4

Data from patients with complex regional pain syndrome type I, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with complex regional pain syndrome type I

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for complex regional pain syndrome type I (7 evaluations)
Side effects
Hospitalization muscle fatigue 4 more
Total evaluations
8
Tried for
complex regional pain syndrome type I (14) pain (9)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for complex regional pain syndrome type I (30 evaluations)
Side effects
brain fog dizziness 10 more
Total evaluations
33
Treatment name(s)

(Lyrica)
Perceived effectiveness
for complex regional pain syndrome type I (2 evaluations)
Side effects
weight gain loopy feeling 2 more
Total evaluations
5
Treatment name(s)

(Elavil)
Perceived effectiveness
for complex regional pain syndrome type I (3 evaluations)
Side effects
dry mouth balance problems 3 more
Total evaluations
7
Tried for
complex regional pain syndrome type I (4) pain (2)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
cognitive confusion itchy skin
Total evaluations
2
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (12 evaluations)
Side effects
constipation nausea
Total evaluations
13
Treatment name(s)

(Lidocaine Viscous)
Perceived effectiveness
for complex regional pain syndrome type I (2 evaluations)
Side effects
Total evaluations
2
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for complex regional pain syndrome type I (5 evaluations)
Side effects
vivid dreams
Total evaluations
5
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for complex regional pain syndrome type I (3 evaluations)
Side effects
back pain change in color of phlegm 6 more
Total evaluations
4
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with complex regional pain syndrome type I, who reported starting treatments within the last 5 years.
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Who has complex regional pain syndrome type I on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 53
30s 93
40s 193
50s 196
60s 129
70+ 25
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 52
20-29 years 65
30-39 years 85
40-49 years 86
50-59 years 30
60-69 years 7
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 109
Female 589

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 388
Not Diagnosed 29

These charts show data from CRPS type I patients who have completed their condition history
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