Chronic pain syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is chronic pain syndrome?

Chronic pain may be in one area of the body or more generalized. The type of pain is based on symptoms and underlying cause. Types of chronic pain may include myofascial (soft tissue areas), musculoskeletal (muscles, joints, bones), neuropathic (nerve), chronic back syndrome and headache syndromes.

Common symptoms reported by people with chronic pain syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with chronic pain syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
37
Tried for
pain (36) chronic pain syndrome (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
32
Tried for
pain (29) chronic pain syndrome (2)
1 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
28
Tried for
pain (25) chronic pain syndrome (4)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
25
Tried for
depressed mood (20) pain (6)
3 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
21
Tried for
pain (19) chronic pain syndrome (2)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
18
Tried for
anxious mood (18)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
18
Tried for
pain (16) chronic pain syndrome (2)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
18
Tried for
depressed mood (16) pain (3)
2 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
15
Tried for
pain (15) anxious mood (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
15
Tried for
depressed mood (15)

Data from patients with chronic pain syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with chronic pain syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (18 evaluations)
Side effects
drowsiness chronic constipation 8 more
Total evaluations
20
Tried for
pain (36) chronic pain syndrome (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (20 evaluations)
Side effects
weight gain balance problems 20 more
Total evaluations
21
Tried for
pain (29) chronic pain syndrome (2)
1 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (20 evaluations)
Side effects
weight gain nausea 18 more
Total evaluations
23
Tried for
pain (25) chronic pain syndrome (4)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (14 evaluations)
Side effects
drowsiness dizziness and feeling faint 7 more
Total evaluations
19
Tried for
depressed mood (20) pain (6)
3 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (10 evaluations)
Side effects
blurry vision constipation 3 more
Total evaluations
10
Tried for
pain (19) chronic pain syndrome (2)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (10 evaluations)
Side effects
brain fog drowsiness 6 more
Total evaluations
13
Tried for
anxious mood (18)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (15 evaluations)
Side effects
constipation chronic constipation 5 more
Total evaluations
17
Tried for
pain (16) chronic pain syndrome (2)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (9 evaluations)
Side effects
weight gain anxious mood 11 more
Total evaluations
12
Tried for
depressed mood (16) pain (3)
2 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (17 evaluations)
Side effects
weight gain dry mouth 11 more
Total evaluations
17
Tried for
pain (15) anxious mood (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
drowsiness itchy skin 1 more
Total evaluations
7
Tried for
depressed mood (15)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic pain syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has chronic pain syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 17
20s 150
30s 508
40s 934
50s 1,140
60s 624
70+ 143
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 224
20-29 years 408
30-39 years 531
40-49 years 385
50-59 years 147
60-69 years 29
70+ years 6

Sex

Distribution of sex

81% Female
19% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,824
Not Diagnosed 348

These charts show data from chronic pain syndrome patients who have completed their condition history
Last updated: