Polycystic Kidney Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Polycystic Kidney Disease?

A genetic disorder characterized by cysts in the kidneys. The more common type is autosomal dominant trait and usually appears at middle age. Patients with the autosomal recessive trait type present with progressive renal failure early in life.

Common symptoms reported by people with Polycystic Kidney Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Polycystic Kidney Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cipralex, Es Pramcit, Esipram) 6 more
Type
Prescription Drug
How many have tried
3
Tried for
Depressed mood (2) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Acetaminophen cream, Alvedon, Atasol-500) 36 more
Type
Over the Counter Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Aplenzin, Budeprion SR, Budeprion XL) 12 more
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (1) Fatigue (1)
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Treatment name(s)

(Advil, Advil Extra Strength, Advil Liqui-Gel) 42 more
Type
Over the Counter Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Aropax, Brisdelle, Deperoc) 11 more
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (1) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(MigraTen, Prodrin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(4 needle technique, Acupuncture - Ear, Acupuncture - Facial) 9 more
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Adderall, Adderall XR, Amphetamine Salts) 2 more
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)

Data from patients with Polycystic Kidney Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Polycystic Kidney Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cipralex, Es Pramcit, Esipram) 6 more
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Weight gain
How many evaluations
2
Tried for
Depressed mood (2) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Acetaminophen cream, Alvedon, Atasol-500) 36 more
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Night sweats
How many evaluations
1
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Aplenzin, Budeprion SR, Budeprion XL) 12 more
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
How many evaluations
1
Tried for
Depressed mood (1) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Advil, Advil Extra Strength, Advil Liqui-Gel) 42 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Aropax, Brisdelle, Deperoc) 11 more
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Anxious mood (1) Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(MigraTen, Prodrin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(4 needle technique, Acupuncture - Ear, Acupuncture - Facial) 9 more
Perceived effectiveness
for Pain (1 evaluation)
Side effects
How many evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
How many evaluations
1
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for Fatigue (5 evaluations)
Side effects
How many evaluations
5
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Adderall, Adderall XR, Amphetamine Salts) 2 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Fatigue (1)

Data from patients with Polycystic Kidney Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Polycystic Kidney Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 20
30s 48
40s 86
50s 138
60s 67
70+ 14

Gender

Distribution of females vs. males

65% Females
35% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 33
20-29 years 37
30-39 years 28
40-49 years 15
50-59 years 8
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 178
Not Diagnosed 7

These charts show data from Polycystic Kidney patients who have completed their condition history
Last updated: