Polycystic kidney disease

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  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is polycystic kidney disease?

A genetic disorder characterized by cysts in the kidneys. The more common type is autosomal dominant trait and usually appears at middle age. Patients with the autosomal recessive trait type present with progressive renal failure early in life.

Common symptoms reported by people with polycystic kidney disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with polycystic kidney disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (2) Depressed mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)
Type
Surgery
How many have tried
2
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with polycystic kidney disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with polycystic kidney disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Drowsiness Insomnia
Total evaluations
4
Tried for
Pain (3)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Anxious mood (2) Depressed mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Depressed mood (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (2)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Zoloft)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Neck movement dizziness (Cervicogenic dizziness)
Total evaluations
1
Tried for
Depressed mood (2)
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Anorgasmia Insomnia 1 more
Total evaluations
2
Tried for
Pain (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Sleepiness
Total evaluations
2
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with polycystic kidney disease, who reported starting treatments within the last 5 years.
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Who has polycystic kidney disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 26
30s 56
40s 96
50s 166
60s 97
70+ 27
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 39
20-29 years 47
30-39 years 28
40-49 years 22
50-59 years 10
60-69 years 0
70+ years 0

Sex

Distribution of sex

67% Female
33% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 220
Not Diagnosed 8

These charts show data from polycystic kidney disease patients who have completed their condition history
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