Cryptogenic organizing pneumonia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is cryptogenic organizing pneumonia?

Cryptogenic Organizing Pneumonia is a chronic inflammation and granulation of the bronchioles and alveoli in the lungs. It is also known as Bronchiolitis obliterans Organizing Pneumonia (BOOP) but should not be confused with another condition called obliterative bronchiolitis.

Common symptoms reported by people with cryptogenic organizing pneumonia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with cryptogenic organizing pneumonia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
Treatment name(s)

(Flovent HFA)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Homozon Oxygen Therapy)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Panafcortelone)
Type
Prescription Drug
How many have tried
1
Treatment name(s)
Type
Over the Counter Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with cryptogenic organizing pneumonia, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with cryptogenic organizing pneumonia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Deltasone)
Perceived effectiveness
for cryptogenic organizing pneumonia (1 evaluation)
Side effects
Rapid weight gain
Total evaluations
1
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Fatigue (1)
Treatment name(s)

(Flovent HFA)
Perceived effectiveness
for cryptogenic organizing pneumonia (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Homozon Oxygen Therapy)
Perceived effectiveness
for cryptogenic organizing pneumonia (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Panafcortelone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cryptogenic organizing pneumonia, who reported starting treatments within the last 5 years.
Last updated:

Who has cryptogenic organizing pneumonia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 1
40s 7
50s 16
60s 16
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 2
40-49 years 3
50-59 years 4
60-69 years 3
70+ years 1

Sex

Distribution of sex

67% Female
33% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 17
Not Diagnosed 2

These charts show data from cryptogenic organizing pneumonia patients who have completed their condition history
Last updated: