Autonomic neuropathy

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What is autonomic neuropathy?

Autonomic neuropathy is damage to the nerves that regulate the autonomic nervous system which controls involuntary functions of the body such as blood pressure, heart rate, bowel and bladder emptying, and digestion.

Common symptoms reported by people with autonomic neuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with autonomic neuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3) pain (1)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
3
Tried for
pain (3) anxious mood (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
3
Tried for
autonomic neuropathy (3) fatigue (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
autonomic neuropathy (1) pain (1)
Type
Lifestyle Modification
How many have tried
2
Tried for
fatigue (2) autonomic neuropathy (1)
Treatment name(s)

(R-lipoic Acid)
Type
Supplement
How many have tried
1
Tried for
autonomic neuropathy (1)
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Subutex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with autonomic neuropathy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with autonomic neuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
grogginess
Total evaluations
5
Tried for
anxious mood (3) pain (1)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
pain (3) anxious mood (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (6 evaluations)
Side effects
constipation drowsiness
Total evaluations
6
Tried for
pain (3)
Treatment name(s)

(Mestinon)
Perceived effectiveness
for autonomic neuropathy (1 evaluation)
Side effects
motion sickness spacing out 1 more
Total evaluations
1
Tried for
autonomic neuropathy (3) fatigue (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for autonomic neuropathy (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
autonomic neuropathy (1) pain (1)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
Total evaluations
2
Tried for
fatigue (2) autonomic neuropathy (1)
Treatment name(s)

(R-lipoic Acid)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
autonomic neuropathy (1)
Treatment name(s)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
feelings of deep sadness feelings of uselessness 4 more
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Subutex)
Perceived effectiveness
for pain (2 evaluations)
Side effects
dizziness pelvic pain 2 more
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (1 evaluation)
Side effects
nausea rash from patch
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with autonomic neuropathy, who reported starting treatments within the last 5 years.
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Who has autonomic neuropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 9
30s 22
40s 51
50s 63
60s 43
70+ 22
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 12
20-29 years 17
30-39 years 24
40-49 years 37
50-59 years 22
60-69 years 11
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 42
Female 171

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 144
Not Diagnosed 16

These charts show data from autonomic neuropathy patients who have completed their condition history
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