Autonomic neuropathy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is autonomic neuropathy?

Autonomic neuropathy is damage to the nerves that regulate the autonomic nervous system which controls involuntary functions of the body such as blood pressure, heart rate, bowel and bladder emptying, and digestion.

Common symptoms reported by people with autonomic neuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with autonomic neuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
3
Tried for
pain (3) anxious mood (2)
Type
Lifestyle Modification
How many have tried
3
Tried for
fatigue (3) autonomic neuropathy (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
3
Tried for
autonomic neuropathy (3) fatigue (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2) pain (1)
Treatment name(s)

(Myofascial release)
Type
Physical Therapy
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(R-lipoic Acid)
Type
Supplement
How many have tried
1
Tried for
autonomic neuropathy (1)
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
stress (1)

Data from patients with autonomic neuropathy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with autonomic neuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
pain (3) anxious mood (2)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
Total evaluations
2
Tried for
fatigue (3) autonomic neuropathy (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (6 evaluations)
Side effects
constipation drowsiness
Total evaluations
6
Tried for
pain (3)
Treatment name(s)

(Mestinon)
Perceived effectiveness
for autonomic neuropathy (1 evaluation)
Side effects
motion sickness spaced out 1 more
Total evaluations
1
Tried for
autonomic neuropathy (3) fatigue (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
grogginess
Total evaluations
4
Tried for
anxious mood (2) pain (1)
Treatment name(s)

(Myofascial release)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation
Total evaluations
2
Tried for
pain (2)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(R-lipoic Acid)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
autonomic neuropathy (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
stress (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with autonomic neuropathy, who reported starting treatments within the last 5 years.
Last updated:

Who has autonomic neuropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 8
30s 26
40s 49
50s 61
60s 45
70+ 14
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 17
30-39 years 23
40-49 years 37
50-59 years 22
60-69 years 11
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 42
Female 164

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 139
Not Diagnosed 16

These charts show data from autonomic neuropathy patients who have completed their condition history
Last updated: