Lymphedema

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  • help each other live better and uncover the best ways to manage your health today
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What is Lymphedema?

Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.

Common symptoms reported by people with Lymphedema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Lymphedema

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
Pain (5)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
3
Tried for
Insomnia (2) Anxious mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
3
Tried for
Depressed mood (3)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
Anxious mood (3) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
Depressed mood (2) Anxious mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Jobst Compression Stockings)
Type
Equipment
How many have tried
2
Tried for
Lymphedema (2)
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Percocet 5/325)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)

Data from patients with Lymphedema, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Lymphedema

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Daytime sleepiness Lightheadedness
How many evaluations
1
Tried for
Pain (5)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (2 evaluations)
Side effects
Dry mouth Drowsiness 1 more
How many evaluations
3
Tried for
Insomnia (2) Anxious mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Depressed mood (3)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (9 evaluations)
Side effects
Drowsy in a.m. Memory and cognition problems
How many evaluations
9
Tried for
Anxious mood (3) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
How many evaluations
1
Tried for
Depressed mood (2) Anxious mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
No evaluations
Side effects
How many evaluations
1
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Jobst Compression Stockings)
Perceived effectiveness
for Lymphedema (4 evaluations)
Side effects
Corns and calluses Pain in knees
How many evaluations
4
Tried for
Lymphedema (2)
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
How many evaluations
1
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Percocet 5/325)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (2)

Data from patients with Lymphedema, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lymphedema on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 11
30s 40
40s 65
50s 101
60s 53
70+ 23

Sex

Distribution of sex

89% Female
11% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 15
30-39 years 32
40-49 years 48
50-59 years 30
60-69 years 14
70+ years 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 184
Not Diagnosed 9

These charts show data from Lymphedema patients who have completed their condition history
Last updated: