Lymphedema

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What is lymphedema?

Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.

Common symptoms reported by people with lymphedema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with lymphedema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
5
Tried for
Anxious mood (5) Fatigue (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
Pain (5)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Tried for
Insomnia (3) Pain (3)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
3
Tried for
Anxious mood (3)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
3
Tried for
Depressed mood (3)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
3
Tried for
Depressed mood (3)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (1) Pain (1)
Treatment name(s)

(Hydrochlorot)
Type
Prescription Drug
How many have tried
2
Tried for
lymphedema (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)

Data from patients with lymphedema, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with lymphedema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Drowsy in a.m. Memory and cognition problems 1 more
Total evaluations
2
Tried for
Anxious mood (5) Fatigue (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Daytime sleepiness Lightheadedness
Total evaluations
1
Tried for
Pain (5)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (4 evaluations)
Side effects
Depressed mood Dry mouth 1 more
Total evaluations
6
Tried for
Insomnia (3) Pain (3)
Treatment name(s)

(Xanax)
Perceived effectiveness
for Anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
Anxious mood (3)
Treatment name(s)

(Celexa)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Drowsiness
Total evaluations
1
Tried for
Depressed mood (3)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Depressed mood (3)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Depressed mood (1) Pain (1)
Treatment name(s)

(Hydrochlorot)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
lymphedema (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
2
Tried for
Pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lymphedema, who reported starting treatments within the last 5 years.
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Who has lymphedema on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 10
30s 57
40s 172
50s 309
60s 224
70+ 50
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 17
30-39 years 41
40-49 years 62
50-59 years 39
60-69 years 19
70+ years 4

Sex

Distribution of sex

94% Female
6% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 225
Not Diagnosed 13

These charts show data from lymphedema patients who have completed their condition history
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