Dissociative identity disorder

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is dissociative identity disorder?

Dissociative identity disorder is a dissociative disorder involving a disturbance of identity in which two or more separate and distinct personality states (or identities) control the individual's behavior at different times.

Common symptoms reported by people with dissociative identity disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with dissociative identity disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
10
Tried for
anxious mood (10)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
10
Tried for
anxious mood (10)
Treatment name(s)
Type
Psychotherapy
How many have tried
10
Tried for
dissociative identity disorder (10) anxious mood (1)
1 more
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (6) depressed mood (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
6
Tried for
depressed mood (6)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (6)
Treatment name(s)

(Talk therapy)
Type
Psychotherapy
How many have tried
6
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
5

Data from patients with dissociative identity disorder, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with dissociative identity disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (8 evaluations)
Side effects
sleepiness fatigue 1 more
Total evaluations
8
Tried for
anxious mood (10)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (8 evaluations)
Side effects
sexual dysfunction tiredness
Total evaluations
8
Tried for
anxious mood (10)
Treatment name(s)
Perceived effectiveness
for dissociative identity disorder (6 evaluations)
Side effects
Total evaluations
6
Tried for
dissociative identity disorder (10) anxious mood (1)
1 more
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
depressed mood
Total evaluations
4
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
Total evaluations
4
Tried for
anxious mood (6) depressed mood (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
decreased sex drive (libido) dizziness and feeling faint 2 more
Total evaluations
4
Tried for
depressed mood (6)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
Total evaluations
5
Tried for
anxious mood (6)
Treatment name(s)

(Talk therapy)
Perceived effectiveness
for dissociative identity disorder (5 evaluations)
Side effects
depression with suicidal thoughts flashbacks
Total evaluations
6
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
chronic constipation increased energy
Total evaluations
3
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
daytime sleepiness
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with dissociative identity disorder, who reported starting treatments within the last 5 years.
Last updated:

Who has dissociative identity disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 9
20s 88
30s 94
40s 121
50s 125
60s 44
70+ 12
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 205
20-29 years 35
30-39 years 25
40-49 years 13
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 53
Female 442

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 319
Not Diagnosed 36

These charts show data from dissociative identity disorder patients who have completed their condition history
Last updated: