Chronic inflammatory demyelinating polyneuropathy

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What is chronic inflammatory demyelinating polyneuropathy?

Chronic inflammatory demyelinating polyradiculoneuropathy is an acquired demyelinating peripheral neuropathy that is thought to be an autoimmune disorder. It is considered the chronic variant of Guillain-Barre syndrome.

Common symptoms reported by people with chronic inflammatory demyelinating polyneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
25
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
7
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with chronic inflammatory demyelinating polyneuropathy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (27 evaluations)
Side effects
headaches fatigue 15 more
Total evaluations
27
Treatment name(s)

(Deltasone)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (2 evaluations)
Side effects
constant hunger fatigue 2 more
Total evaluations
2
Treatment name(s)

(Neurontin)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
brain fog
Total evaluations
1
Treatment name(s)

(Lyrica)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
blurry vision
Total evaluations
1
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
insomnia tremor(s) 2 more
Total evaluations
1
Treatment name(s)

(Ultram)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Imuran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
dry mouth
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic inflammatory demyelinating polyneuropathy, who reported starting treatments within the last 5 years.
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Who has chronic inflammatory demyelinating polyneuropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 8
30s 26
40s 65
50s 114
60s 112
70+ 78
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 19
30-39 years 24
40-49 years 53
50-59 years 45
60-69 years 28
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 164
Female 245

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 217
Not Diagnosed 12

These charts show data from CIDP patients who have completed their condition history
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