Chronic inflammatory demyelinating polyneuropathy

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What is chronic inflammatory demyelinating polyneuropathy?

Chronic inflammatory demyelinating polyradiculoneuropathy is an acquired demyelinating peripheral neuropathy that is thought to be an autoimmune disorder. It is considered the chronic variant of Guillain-Barre syndrome.

Common symptoms reported by people with chronic inflammatory demyelinating polyneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
249
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
199
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
164
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
62
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
81

Data from patients with chronic inflammatory demyelinating polyneuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (7 evaluations)
Side effects
headaches burning sensation in skin 5 more
Total evaluations
7
Treatment name(s)

(Neurontin)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
constant hunger insomnia 2 more
Total evaluations
3
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
insomnia tremor(s) 2 more
Total evaluations
1
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic inflammatory demyelinating polyneuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has chronic inflammatory demyelinating polyneuropathy on PatientsLikeMe?

  • 0 new patients joined this month
  • 390 say CIDP is their primary condition

Age
Age Proportion # of patients
<20 2
20s 8
30s 27
40s 69
50s 118
60s 143
70+ 121
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 20
30-39 years 26
40-49 years 53
50-59 years 50
60-69 years 28
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 196
Female 298

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 229
Not Diagnosed 13

These charts show data from CIDP patients who have completed their condition history
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