Chronic inflammatory demyelinating polyneuropathy

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What is chronic inflammatory demyelinating polyneuropathy?

Chronic inflammatory demyelinating polyradiculoneuropathy is an acquired demyelinating peripheral neuropathy that is thought to be an autoimmune disorder. It is considered the chronic variant of Guillain-Barre syndrome.

Common symptoms reported by people with chronic inflammatory demyelinating polyneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
28
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
10
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
2

Data from patients with chronic inflammatory demyelinating polyneuropathy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (24 evaluations)
Side effects
headaches fatigue 16 more
Total evaluations
24
Treatment name(s)

(Deltasone)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (4 evaluations)
Side effects
blindness cataracts from high dose prednisone 2 more
Total evaluations
4
Treatment name(s)

(Neurontin)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (3 evaluations)
Side effects
brain fog
Total evaluations
3
Treatment name(s)

(Lyrica)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (2 evaluations)
Side effects
blurry vision tiredness increased
Total evaluations
2
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
insomnia tremor(s) 2 more
Total evaluations
1
Treatment name(s)

(Imuran)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Ultram)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
No evaluations
Side effects
ejaculation difficult
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic inflammatory demyelinating polyneuropathy, who reported starting treatments within the last 5 years.
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Who has chronic inflammatory demyelinating polyneuropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 7
30s 19
40s 55
50s 104
60s 94
70+ 63
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 18
30-39 years 21
40-49 years 51
50-59 years 40
60-69 years 27
70+ years 5

Sex

Distribution of sex

58% Female
42% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 192
Not Diagnosed 9

These charts show data from CIDP patients who have completed their condition history
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