Tinnitus

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is tinnitus?

Tinnitus is a noise in the ears. Most tinnitus is subjective meaning the patient has the perception of sound in the absence of an acoustic stimulus. Objective tinnitus is noise generated by structures near the ear.

Common symptoms reported by people with tinnitus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with tinnitus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
11
Tried for
pain (11)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
8
Tried for
pain (8)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (6) pain (2)
2 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
7
Tried for
pain (7)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (7)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
6
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (6) depressed mood (3)
1 more
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
6
Tried for
pain (5) anxious mood (4)
2 more
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (6)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
6
Tried for
depressed mood (6) anxious mood (4)

Data from patients with tinnitus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with tinnitus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (17 evaluations)
Side effects
eye pain balance problems 27 more
Total evaluations
17
Tried for
pain (11)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (8)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (8 evaluations)
Side effects
constant tiredness depressed mood 4 more
Total evaluations
9
Tried for
depressed mood (6) pain (2)
2 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (3 evaluations)
Side effects
stomach pain
Total evaluations
2
Tried for
pain (7)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (8 evaluations)
Side effects
apathy ejaculation delayed 4 more
Total evaluations
8
Tried for
depressed mood (7)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
dry mouth intoxicated feeling 3 more
Total evaluations
4
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (8 evaluations)
Side effects
sleepiness
Total evaluations
8
Tried for
anxious mood (6) depressed mood (3)
1 more
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (5) anxious mood (4)
2 more
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
drowsiness
Total evaluations
4
Tried for
anxious mood (6)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for depressed mood (5 evaluations)
Side effects
cognitive confusion difficulty waking up 7 more
Total evaluations
6
Tried for
depressed mood (6) anxious mood (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with tinnitus, who reported starting treatments within the last 5 years.
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Who has tinnitus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 49
30s 133
40s 207
50s 297
60s 254
70+ 84
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 99
20-29 years 100
30-39 years 103
40-49 years 112
50-59 years 79
60-69 years 21
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 389
Female 645

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 531
Not Diagnosed 155

These charts show data from tinnitus patients who have completed their condition history
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