Adrenomyeloneuropathy

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What is adrenomyeloneuropathy?

Adrenomyeloneuropathy, a milder form of adrenoleukodystrophy (X-ALD), is a rare inherited disorder that begins in adolescence or adulthood. It is characterized by spinal cord dysfunction with progressive stiffness and weakness of the legs, abnormal sphincter muscle control, and sexual dysfunction.

Common symptoms reported by people with adrenomyeloneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with adrenomyeloneuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
1
Tried for
adrenomyeloneuropathy (1)
Treatment name(s)

(Cortef)
Type
Prescription Drug
How many have tried
1
Tried for
adrenomyeloneuropathy (1)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with adrenomyeloneuropathy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with adrenomyeloneuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Abilify)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Florinef)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
adrenomyeloneuropathy (1)
Treatment name(s)

(Cortef)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
adrenomyeloneuropathy (1)
Treatment name(s)

(Inderal)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
suicidal thoughts or urges
Total evaluations
1
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with adrenomyeloneuropathy, who reported starting treatments within the last 5 years.
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Who has adrenomyeloneuropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 4
40s 12
50s 3
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 2
30-39 years 3
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 20
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 0

These charts show data from adrenomyeloneuropathy patients who have completed their condition history
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