Trigeminal neuralgia

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What is trigeminal neuralgia?

Trigeminal neuralgia is a facial pain syndrome due to a disorder of the 5th cranial nerve. It is characterized by some combination of sharp, stabbing, intense facial pain.

Common symptoms reported by people with trigeminal neuralgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with trigeminal neuralgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
33
Tried for
trigeminal neuralgia (33)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
13
Tried for
pain (9) trigeminal neuralgia (4)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
12
Tried for
trigeminal neuralgia (12)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
7
Tried for
pain (5) anxious mood (3)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7) trigeminal neuralgia (1)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (5) pain (2)
1 more
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
6
Tried for
trigeminal neuralgia (4) pain (3)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
5
Tried for
pain (3) anxious mood (2)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (4) anxious mood (1)

Data from patients with trigeminal neuralgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with trigeminal neuralgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tegretol)
Perceived effectiveness
for trigeminal neuralgia (19 evaluations)
Side effects
balance problems excessive daytime sleepiness (somnolence) 18 more
Total evaluations
19
Tried for
trigeminal neuralgia (33)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
brain fog dizziness 3 more
Total evaluations
6
Tried for
pain (9) trigeminal neuralgia (4)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for trigeminal neuralgia (10 evaluations)
Side effects
drowsiness heart rate low (bradycardia) 3 more
Total evaluations
14
Tried for
trigeminal neuralgia (12)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
anxiety attacks dizziness 7 more
Total evaluations
7
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
5
Tried for
pain (5) anxious mood (3)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (2 evaluations)
Side effects
dry mouth sleeplessness 1 more
Total evaluations
2
Tried for
pain (7) trigeminal neuralgia (1)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
decreased appetite
Total evaluations
2
Tried for
depressed mood (5) pain (2)
1 more
Treatment name(s)

(Trileptal)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
2
Tried for
trigeminal neuralgia (4) pain (3)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (3 evaluations)
Side effects
sleepiness short term memory problems
Total evaluations
15
Tried for
pain (3) anxious mood (2)
Treatment name(s)

(Zoloft)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (4) anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with trigeminal neuralgia, who reported starting treatments within the last 5 years.
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Who has trigeminal neuralgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 29
30s 105
40s 250
50s 266
60s 175
70+ 68
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 79
30-39 years 126
40-49 years 125
50-59 years 83
60-69 years 18
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 125
Female 775

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 528
Not Diagnosed 30

These charts show data from trigeminal neuralgia patients who have completed their condition history
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