Panhypopituitarism

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is panhypopituitarism?

The pituitary gland at the base of the brain normally secretes eight hormones. Panhypopituitarism is when there is a decrease secretion of most of the pituitary hormones.

Common symptoms reported by people with panhypopituitarism

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with panhypopituitarism

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cortef)
Type
Prescription Drug
How many have tried
2
Tried for
panhypopituitarism (2)
Treatment name(s)

(Bioidentical hormone cream)
Type
Prescription Drug
How many have tried
1
Tried for
panhypopituitarism (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
panhypopituitarism (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Natural lithium)
Type
Supplement
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with panhypopituitarism, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with panhypopituitarism

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cortef)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
panhypopituitarism (2)
Treatment name(s)

(Bioidentical hormone cream)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
panhypopituitarism (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
panhypopituitarism (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
bruising
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Natural lithium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (1 evaluation)
Side effects
muscle spasms
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Percocet)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Leg brace)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with panhypopituitarism, who reported starting treatments within the last 5 years.
Last updated:

Who has panhypopituitarism on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 15
30s 15
40s 23
50s 22
60s 19
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 6
30-39 years 12
40-49 years 6
50-59 years 4
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 32
Female 67

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 54
Not Diagnosed 0

These charts show data from panhypopituitarism patients who have completed their condition history
Last updated: