Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
1975
Tried for
breast cancer (16)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Type
Procedures
How many have tried
2039
Tried for
breast cancer (9)
Treatment name(s)

(Modified radical mastectomy)
Type
Surgery
How many have tried
1703
Tried for
breast cancer (6)
Treatment name(s)
Type
Surgery
How many have tried
1750
Tried for
breast cancer (3)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Type
Surgery
How many have tried
1727
Tried for
breast cancer (2)

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (7 evaluations)
Side effects
hair loss brittle nails 15 more
Total evaluations
7
Tried for
breast cancer (16)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Perceived effectiveness
for breast cancer (2 evaluations)
Side effects
fatigue
Total evaluations
2
Tried for
breast cancer (9)
Treatment name(s)

(Modified radical mastectomy)
Perceived effectiveness
for breast cancer (2 evaluations)
Side effects
Hospitalization
Total evaluations
2
Tried for
breast cancer (6)
Treatment name(s)
Perceived effectiveness
for breast cancer (2 evaluations)
Side effects
breast soreness
Total evaluations
2
Tried for
breast cancer (3)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
breast cancer (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has breast cancer on PatientsLikeMe?

  • 12 new patients joined this month
  • 5310 say breast cancer is their primary condition

Age
Age Proportion # of patients
<20 3
20s 74
30s 262
40s 655
50s 1687
60s 1905
70+ 1016

Distribution of sex

Sex
Sex Proportion # of patients
Male 180
Female 5503

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 62
Ductal carcinoma in situ (DCIS) 1295
HER2-positive breast cancer 257
Hormone-receptor positive breast cancer 414
Inflammatory breast cancer (IBC) 144
Invasive ductal carcinoma (IDC) 1921
Invasive lobular carcinoma (ILC) 415
Lobular carcinoma in situ (LCIS) 131
Paget's disease of the nipple 27
Phyllodes tumor of the breast 19
Triple negative breast cancer 167
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4442
Not Diagnosed 151

These charts show data from breast cancer patients who have completed their condition history
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