Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
107
Tried for
breast cancer (107)
Treatment name(s)

(Bilateral mastectomy)
Type
Surgery
How many have tried
62
Tried for
breast cancer (62)
Treatment name(s)
Type
Surgery
How many have tried
55
Tried for
breast cancer (55)
Treatment name(s)

(Intensity-Modulated Radiation)
Type
Procedures
How many have tried
55
Tried for
breast cancer (55)
Type
Surgery
How many have tried
40
Tried for
breast cancer (40)
Treatment name(s)

(Nolvadex)
Type
Prescription Drug
How many have tried
32
Tried for
breast cancer (32)
Treatment name(s)
Type
Surgery
How many have tried
31
Tried for
breast cancer (31)
Treatment name(s)

(Arimidex)
Type
Prescription Drug
How many have tried
28
Tried for
breast cancer (28)
Treatment name(s)

(Femara)
Type
Prescription Drug
How many have tried
17
Tried for
breast cancer (17)
Treatment name(s)

(Aromasin)
Type
Prescription Drug
How many have tried
10
Tried for
breast cancer (10)

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (64 evaluations)
Side effects
hair loss fatigue 77 more
Total evaluations
64
Tried for
breast cancer (107)
Treatment name(s)

(Bilateral mastectomy)
Perceived effectiveness
for breast cancer (19 evaluations)
Side effects
Hospitalization pain 13 more
Total evaluations
20
Tried for
breast cancer (62)
Treatment name(s)
Perceived effectiveness
for breast cancer (14 evaluations)
Side effects
Hospitalization breast soreness 14 more
Total evaluations
15
Tried for
breast cancer (55)
Treatment name(s)

(Intensity-Modulated Radiation)
Perceived effectiveness
for breast cancer (27 evaluations)
Side effects
fatigue burn 25 more
Total evaluations
25
Tried for
breast cancer (55)
Perceived effectiveness
for breast cancer (11 evaluations)
Side effects
limited range of motion numbness 11 more
Total evaluations
11
Tried for
breast cancer (40)
Treatment name(s)

(Nolvadex)
Perceived effectiveness
for breast cancer (13 evaluations)
Side effects
fatigue hot flashes 28 more
Total evaluations
16
Tried for
breast cancer (32)
Treatment name(s)
Perceived effectiveness
for breast cancer (12 evaluations)
Side effects
Hospitalization pain 10 more
Total evaluations
12
Tried for
breast cancer (31)
Treatment name(s)

(Arimidex)
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
hot flashes joint pain 11 more
Total evaluations
16
Tried for
breast cancer (28)
Treatment name(s)

(Femara)
Perceived effectiveness
for breast cancer (9 evaluations)
Side effects
joint pain diarrhea 9 more
Total evaluations
9
Tried for
breast cancer (17)
Treatment name(s)

(Aromasin)
Perceived effectiveness
for breast cancer (6 evaluations)
Side effects
bone pain diabetes type 2 7 more
Total evaluations
6
Tried for
breast cancer (10)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Who has breast cancer on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 74
30s 267
40s 905
50s 1,698
60s 1,439
70+ 447
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 38
30-39 years 96
40-49 years 179
50-59 years 148
60-69 years 58
70+ years 8

Distribution of sex

Sex
Sex Proportion # of patients
Male 124
Female 4,780

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 46
Ductal carcinoma in situ (DCIS) 1,189
HER2-positive breast cancer 22
Hormone-receptor positive breast cancer 36
Inflammatory breast cancer (IBC) 131
Invasive ductal carcinoma (IDC) 1,742
Invasive lobular carcinoma (ILC) 372
Lobular carcinoma in situ (LCIS) 120
Paget's disease of the nipple 25
Phyllodes tumor of the breast 19
Triple negative breast cancer 10
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4,045
Not Diagnosed 127

These charts show data from breast cancer patients who have completed their condition history
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