Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
91
Tried for
breast cancer (91)
Treatment name(s)

(Bilateral mastectomy)
Type
Surgery
How many have tried
65
Tried for
breast cancer (65)
Treatment name(s)

(Intensity-Modulated Radiation)
Type
Procedures
How many have tried
56
Tried for
breast cancer (56)
Treatment name(s)
Type
Surgery
How many have tried
54
Tried for
breast cancer (54)
Type
Surgery
How many have tried
36
Tried for
breast cancer (36)
Treatment name(s)

(Nolvadex)
Type
Prescription Drug
How many have tried
32
Tried for
breast cancer (32)
Treatment name(s)
Type
Surgery
How many have tried
27
Tried for
breast cancer (27)
Treatment name(s)

(Arimidex)
Type
Prescription Drug
How many have tried
26
Tried for
breast cancer (26)
Treatment name(s)

(Femara)
Type
Prescription Drug
How many have tried
15
Tried for
breast cancer (15)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
10
Tried for
Pain (9) breast cancer (1)

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (57 evaluations)
Side effects
Fatigue Hair loss 69 more
Total evaluations
57
Tried for
breast cancer (91)
Treatment name(s)

(Bilateral mastectomy)
Perceived effectiveness
for breast cancer (20 evaluations)
Side effects
Hospitalization Pain 14 more
Total evaluations
21
Tried for
breast cancer (65)
Treatment name(s)

(Intensity-Modulated Radiation)
Perceived effectiveness
for breast cancer (21 evaluations)
Side effects
Fatigue Radiation burn 18 more
Total evaluations
21
Tried for
breast cancer (56)
Treatment name(s)
Perceived effectiveness
for breast cancer (14 evaluations)
Side effects
Hospitalization Breast soreness 10 more
Total evaluations
16
Tried for
breast cancer (54)
Perceived effectiveness
for breast cancer (9 evaluations)
Side effects
Numbness Pain 7 more
Total evaluations
9
Tried for
breast cancer (36)
Treatment name(s)

(Nolvadex)
Perceived effectiveness
for breast cancer (14 evaluations)
Side effects
Hot flashes Excessive sweating 28 more
Total evaluations
17
Tried for
breast cancer (32)
Treatment name(s)
Perceived effectiveness
for breast cancer (10 evaluations)
Side effects
Hospitalization Pain 11 more
Total evaluations
10
Tried for
breast cancer (27)
Treatment name(s)

(Arimidex)
Perceived effectiveness
for breast cancer (17 evaluations)
Side effects
Hot flashes Joint pain 14 more
Total evaluations
17
Tried for
breast cancer (26)
Treatment name(s)

(Femara)
Perceived effectiveness
for breast cancer (8 evaluations)
Side effects
Joint pain Arthralgia 8 more
Total evaluations
8
Tried for
breast cancer (15)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Constipation
Total evaluations
2
Tried for
Pain (9) breast cancer (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Who has breast cancer on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 68
30s 251
40s 867
50s 1,531
60s 1,189
70+ 332
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 38
30-39 years 92
40-49 years 170
50-59 years 144
60-69 years 58
70+ years 8

Sex

Distribution of sex

98% Female
2% Male

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 41
Ductal carcinoma in situ (DCIS) 1,041
Inflammatory breast cancer (IBC) 113
Invasive ductal carcinoma (IDC) 1,447
Invasive lobular carcinoma (ILC) 317
Lobular carcinoma in situ (LCIS) 105
Paget's disease of the nipple 21
Phyllodes tumor of the breast 20
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3,514
Not Diagnosed 118

These charts show data from breast cancer patients who have completed their condition history
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