Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
106
Tried for
breast cancer (106)
Treatment name(s)

(Bilateral mastectomy)
Type
Surgery
How many have tried
66
Tried for
breast cancer (66)
Treatment name(s)
Type
Surgery
How many have tried
57
Tried for
breast cancer (57)
Treatment name(s)

(Intensity-Modulated Radiation)
Type
Procedures
How many have tried
55
Tried for
breast cancer (55)
Type
Surgery
How many have tried
43
Tried for
breast cancer (43)
Treatment name(s)

(Nolvadex)
Type
Prescription Drug
How many have tried
33
Tried for
breast cancer (33)
Treatment name(s)
Type
Surgery
How many have tried
31
Tried for
breast cancer (31)
Treatment name(s)

(Arimidex)
Type
Prescription Drug
How many have tried
30
Tried for
breast cancer (30)
Treatment name(s)

(Femara)
Type
Prescription Drug
How many have tried
17
Tried for
breast cancer (17)
Treatment name(s)

(Aromasin)
Type
Prescription Drug
How many have tried
9
Tried for
breast cancer (9)

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (61 evaluations)
Side effects
hair loss fatigue 76 more
Total evaluations
61
Tried for
breast cancer (106)
Treatment name(s)

(Bilateral mastectomy)
Perceived effectiveness
for breast cancer (21 evaluations)
Side effects
Hospitalization pain 14 more
Total evaluations
22
Tried for
breast cancer (66)
Treatment name(s)
Perceived effectiveness
for breast cancer (14 evaluations)
Side effects
Hospitalization breast soreness 14 more
Total evaluations
16
Tried for
breast cancer (57)
Treatment name(s)

(Intensity-Modulated Radiation)
Perceived effectiveness
for breast cancer (25 evaluations)
Side effects
fatigue burn 24 more
Total evaluations
24
Tried for
breast cancer (55)
Perceived effectiveness
for breast cancer (11 evaluations)
Side effects
limited range of motion numbness 11 more
Total evaluations
11
Tried for
breast cancer (43)
Treatment name(s)

(Nolvadex)
Perceived effectiveness
for breast cancer (13 evaluations)
Side effects
fatigue hot flashes 28 more
Total evaluations
16
Tried for
breast cancer (33)
Treatment name(s)
Perceived effectiveness
for breast cancer (12 evaluations)
Side effects
Hospitalization pain 10 more
Total evaluations
12
Tried for
breast cancer (31)
Treatment name(s)

(Arimidex)
Perceived effectiveness
for breast cancer (16 evaluations)
Side effects
hot flashes joint pain 12 more
Total evaluations
17
Tried for
breast cancer (30)
Treatment name(s)

(Femara)
Perceived effectiveness
for breast cancer (9 evaluations)
Side effects
joint pain diarrhea 9 more
Total evaluations
9
Tried for
breast cancer (17)
Treatment name(s)

(Aromasin)
Perceived effectiveness
for breast cancer (6 evaluations)
Side effects
bone pain diabetes type 2 7 more
Total evaluations
6
Tried for
breast cancer (9)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Who has breast cancer on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 74
30s 270
40s 904
50s 1,701
60s 1,419
70+ 435
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 38
30-39 years 96
40-49 years 179
50-59 years 148
60-69 years 58
70+ years 8

Distribution of sex

Sex
Sex Proportion # of patients
Male 123
Female 4,752

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 46
Ductal carcinoma in situ (DCIS) 1,182
HER2-positive breast cancer 18
Hormone-receptor positive breast cancer 28
Inflammatory breast cancer (IBC) 131
Invasive ductal carcinoma (IDC) 1,730
Invasive lobular carcinoma (ILC) 370
Lobular carcinoma in situ (LCIS) 119
Paget's disease of the nipple 25
Phyllodes tumor of the breast 19
Triple negative breast cancer 7
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4,025
Not Diagnosed 126

These charts show data from breast cancer patients who have completed their condition history
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