Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
1963
Tried for
breast cancer (20)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Type
Procedures
How many have tried
2031
Tried for
breast cancer (11)
Treatment name(s)

(Modified radical mastectomy)
Type
Surgery
How many have tried
1698
Tried for
breast cancer (9)
Treatment name(s)
Type
Surgery
How many have tried
1745
Tried for
breast cancer (7)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Type
Surgery
How many have tried
1724
Tried for
breast cancer (7)
Treatment name(s)

(TRAM flap with abdominal mesh)
Type
Surgery
How many have tried
983
Tried for
breast cancer (3)

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (10 evaluations)
Side effects
hair loss mouth sores (ulcers) 24 more
Total evaluations
10
Tried for
breast cancer (20)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Perceived effectiveness
for breast cancer (8 evaluations)
Side effects
burn burning sensation 2 more
Total evaluations
6
Tried for
breast cancer (11)
Treatment name(s)

(Modified radical mastectomy)
Perceived effectiveness
for breast cancer (3 evaluations)
Side effects
Hospitalization
Total evaluations
3
Tried for
breast cancer (9)
Treatment name(s)
Perceived effectiveness
for breast cancer (3 evaluations)
Side effects
breast soreness bruising
Total evaluations
3
Tried for
breast cancer (7)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Perceived effectiveness
for breast cancer (1 evaluation)
Side effects
bruising
Total evaluations
1
Tried for
breast cancer (7)
Treatment name(s)

(TRAM flap with abdominal mesh)
Perceived effectiveness
for breast cancer (2 evaluations)
Side effects
Hospitalization Jackson-Pratt (JP) drain problem
Total evaluations
2
Tried for
breast cancer (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has breast cancer on PatientsLikeMe?

  • 15 new patients joined this month
  • 5258 say breast cancer is their primary condition

Age
Age Proportion # of patients
<20 2
20s 71
30s 259
40s 698
50s 1720
60s 1865
70+ 928

Distribution of sex

Sex
Sex Proportion # of patients
Male 175
Female 5462

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 62
Ductal carcinoma in situ (DCIS) 1291
HER2-positive breast cancer 249
Hormone-receptor positive breast cancer 410
Inflammatory breast cancer (IBC) 143
Invasive ductal carcinoma (IDC) 1916
Invasive lobular carcinoma (ILC) 413
Lobular carcinoma in situ (LCIS) 131
Paget's disease of the nipple 27
Phyllodes tumor of the breast 19
Triple negative breast cancer 165
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4427
Not Diagnosed 149

These charts show data from breast cancer patients who have completed their condition history
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