Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
1930
Tried for
breast cancer (85)
Treatment name(s)
Type
Surgery
How many have tried
1728
Tried for
breast cancer (38)
Treatment name(s)

(Modified radical mastectomy)
Type
Surgery
How many have tried
1674
Tried for
breast cancer (36)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Type
Surgery
How many have tried
1695
Tried for
breast cancer (32)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Type
Procedures
How many have tried
2012
Tried for
breast cancer (32)
Treatment name(s)

(TRAM flap with abdominal mesh)
Type
Surgery
How many have tried
976
Tried for
breast cancer (18)

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (54 evaluations)
Side effects
fatigue hair loss 69 more
Total evaluations
54
Tried for
breast cancer (85)
Treatment name(s)
Perceived effectiveness
for breast cancer (11 evaluations)
Side effects
breast soreness bruising 10 more
Total evaluations
12
Tried for
breast cancer (38)
Treatment name(s)

(Modified radical mastectomy)
Perceived effectiveness
for breast cancer (12 evaluations)
Side effects
Hospitalization pain 5 more
Total evaluations
12
Tried for
breast cancer (36)
Treatment name(s)

(Mediastinal Lymph Node Dissection)
Perceived effectiveness
for breast cancer (9 evaluations)
Side effects
numbness pain 10 more
Total evaluations
9
Tried for
breast cancer (32)
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
fatigue burn 11 more
Total evaluations
13
Tried for
breast cancer (32)
Treatment name(s)

(TRAM flap with abdominal mesh)
Perceived effectiveness
for breast cancer (9 evaluations)
Side effects
Hospitalization pain 7 more
Total evaluations
9
Tried for
breast cancer (18)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has breast cancer on PatientsLikeMe?

  • 9 new patients joined this month
  • 5139 say breast cancer is their primary condition

Age
Age Proportion # of patients
<20 2
20s 82
30s 292
40s 760
50s 1761
60s 1744
70+ 767

Distribution of sex

Sex
Sex Proportion # of patients
Male 178
Female 5321

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 54
Ductal carcinoma in situ (DCIS) 1274
HER2-positive breast cancer 221
Hormone-receptor positive breast cancer 380
Inflammatory breast cancer (IBC) 142
Invasive ductal carcinoma (IDC) 1884
Invasive lobular carcinoma (ILC) 406
Lobular carcinoma in situ (LCIS) 127
Paget's disease of the nipple 27
Phyllodes tumor of the breast 19
Triple negative breast cancer 156
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4363
Not Diagnosed 153

These charts show data from breast cancer patients who have completed their condition history
Last updated: