Brain tumor

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is brain tumor?

A primary brain tumor is a group of abnormal cells that start in the brain.

Common symptoms reported by people with brain tumor

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with brain tumor

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Left Temporal Lobectomy)
Type
Surgery
How many have tried
7
Tried for
brain tumor (7)
Treatment name(s)

(Right frontal craniotomy)
Type
Surgery
How many have tried
4
Tried for
brain tumor (4)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2) brain tumor (1)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lipitor)
Type
Prescription Drug
How many have tried
1
Tried for
brain tumor (1)
Treatment name(s)

(Avastin)
Type
Prescription Drug
How many have tried
1
Tried for
brain tumor (1)
Treatment name(s)

(Spirulina)
Type
Supplement
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Subutex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Calcium 600 plus D)
Type
Supplement
How many have tried
1
Tried for
depressed mood (1)

Data from patients with brain tumor, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with brain tumor

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Left Temporal Lobectomy)
Perceived effectiveness
for brain tumor (4 evaluations)
Side effects
Hospitalization cerebrospinal fluid leak 6 more
Total evaluations
4
Tried for
brain tumor (7)
Treatment name(s)

(Right frontal craniotomy)
Perceived effectiveness
for brain tumor (1 evaluation)
Side effects
poor working memory
Total evaluations
1
Tried for
brain tumor (4)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (1 evaluation)
Side effects
nausea speedy feeling
Total evaluations
2
Tried for
pain (2) brain tumor (1)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Lipitor)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
brain tumor (1)
Treatment name(s)

(Avastin)
Perceived effectiveness
for brain tumor (1 evaluation)
Side effects
Total evaluations
1
Tried for
brain tumor (1)
Treatment name(s)

(Spirulina)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Subutex)
Perceived effectiveness
for pain (2 evaluations)
Side effects
dizziness pelvic pain 2 more
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Calcium 600 plus D)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with brain tumor, who reported starting treatments within the last 5 years.
Last updated:

Who has brain tumor on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 21
30s 53
40s 82
50s 88
60s 51
70+ 15
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 26
20-29 years 14
30-39 years 13
40-49 years 19
50-59 years 9
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 108
Female 213

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 200
Not Diagnosed 6

These charts show data from brain tumor patients who have completed their condition history
Last updated: