Brain damage in infancy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is brain damage in infancy?

The immature brain is vulnerable to a number of prenatal (before birth) and early postnatal (after birth) stresses, such as maternal infection and birth asphyxia, which produce permanent damage and serious neurologic dysfunction in the survivors.

Common symptoms reported by people with brain damage in infancy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with brain damage in infancy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Radical hysterectomy)
Type
Surgery
How many have tried
1
Tried for
pain (1)

Data from patients with brain damage in infancy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with brain damage in infancy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
somnolence
Total evaluations
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Radical hysterectomy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with brain damage in infancy, who reported starting treatments within the last 5 years.
Last updated:

Who has brain damage in infancy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 9
30s 35
40s 18
50s 26
60s 12
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 18
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 40
Female 64

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 28
Not Diagnosed 8

These charts show data from brain damage in infancy patients who have completed their condition history
Last updated: