Arachnoiditis

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What is arachnoiditis?

Arachnoiditis is a neuropathic disease caused by the inflammation of the arachnoid, one of the membranes that surround and protect the nerves of the central nervous system, including the brain and spinal cord. Treatment is aimed at managing pain and improving daily functioning.

Common symptoms reported by people with arachnoiditis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with arachnoiditis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
4
Tried for
arachnoiditis (4)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Azor)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
arachnoiditis (1)
Treatment name(s)
Type
Psychotherapy
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Fluanxol)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with arachnoiditis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with arachnoiditis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for arachnoiditis (1 evaluation)
Side effects
nerve pain in legs
Total evaluations
1
Tried for
arachnoiditis (4)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
for pain (2 evaluations)
Side effects
cognitive confusion
Total evaluations
2
Tried for
pain (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (1)
Treatment name(s)

(Azor)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sleepiness
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
arachnoiditis (1)
Treatment name(s)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sleepiness
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Fluanxol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with arachnoiditis, who reported starting treatments within the last 5 years.
Last updated:

Who has arachnoiditis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 6
30s 9
40s 25
50s 52
60s 30
70+ 11
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 6
30-39 years 19
40-49 years 21
50-59 years 4
60-69 years 1
70+ years 0

Sex

Distribution of sex

74% Female
26% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 61
Not Diagnosed 7

These charts show data from arachnoiditis patients who have completed their condition history
Last updated: