Celiac disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is celiac disease?

Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley.

Common symptoms reported by people with celiac disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with celiac disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Type
Nutrition/Diet
How many have tried
17
Tried for
celiac disease (17)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
5
Tried for
anxious mood (5)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5) anxious mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
Pain (5)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
5
Tried for
Pain (5)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
5
Tried for
Pain (5)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4) Pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)

Data from patients with celiac disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with celiac disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Perceived effectiveness
for celiac disease (11 evaluations)
Side effects
malnutrition weight loss
Total evaluations
11
Tried for
celiac disease (17)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (9 evaluations)
Side effects
depressed mood disorientation 5 more
Total evaluations
9
Tried for
anxious mood (5)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
dizziness and feeling faint nausea 1 more
Total evaluations
3
Tried for
depressed mood (5) anxious mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
lethargic in the the morning male sexual dysfunction
Total evaluations
3
Tried for
Pain (5)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
upset stomach
Total evaluations
4
Tried for
Pain (5)
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (5 evaluations)
Side effects
anxiety and frustration chronic constipation 2 more
Total evaluations
5
Tried for
Pain (5)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
anxious mood (4)
Treatment name(s)

(Celebrex)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
drowsiness stomach pain
Total evaluations
5
Tried for
Pain (4)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
drowsiness nausea 1 more
Total evaluations
5
Tried for
depressed mood (4) Pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
Pain (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with celiac disease, who reported starting treatments within the last 5 years.
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Who has celiac disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 20
20s 131
30s 229
40s 247
50s 226
60s 113
70+ 28
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 199
20-29 years 156
30-39 years 89
40-49 years 79
50-59 years 34
60-69 years 7
70+ years 1

Sex

Distribution of sex

84% Female
16% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 622
Not Diagnosed 87

These charts show data from celiac disease patients who have completed their condition history
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