Celiac disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is celiac disease?

Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley.

Common symptoms reported by people with celiac disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for celiac disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Type
Nutrition/Diet
How many have tried
592
Tried for
celiac disease (2)

Data from patients with celiac disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with celiac disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
celiac disease (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with celiac disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has celiac disease on PatientsLikeMe?

  • 2 new patients joined this month
  • 541 say celiac disease is their primary condition

Age
Age Proportion # of patients
<20 20
20s 102
30s 253
40s 290
50s 312
60s 237
70+ 82
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 221
20-29 years 171
30-39 years 96
40-49 years 86
50-59 years 39
60-69 years 8
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 215
Female 1084

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 732
Not Diagnosed 92

These charts show data from celiac disease patients who have completed their condition history
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