Celiac disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is celiac disease?

Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley.

Common symptoms reported by people with celiac disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with celiac disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Type
Nutrition/Diet
How many have tried
14
Tried for
celiac disease (14)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
4
Tried for
pain (4) anxious mood (2)
1 more
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4) anxious mood (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
3
Tried for
pain (3) anxious mood (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)

Data from patients with celiac disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with celiac disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Perceived effectiveness
for celiac disease (9 evaluations)
Side effects
malnutrition weight loss
Total evaluations
9
Tried for
celiac disease (14)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
anxious mood (4)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
cognitive impairment
Total evaluations
2
Tried for
pain (4) anxious mood (2)
1 more
Treatment name(s)

(Celebrex)
Perceived effectiveness
for pain (3 evaluations)
Side effects
drowsiness stomach pain
Total evaluations
5
Tried for
pain (4)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (9 evaluations)
Side effects
depressed mood disorientation 5 more
Total evaluations
9
Tried for
anxious mood (4)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
dizziness and feeling faint nausea 1 more
Total evaluations
3
Tried for
depressed mood (4) anxious mood (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (3 evaluations)
Side effects
anxiety and frustration chronic constipation 2 more
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
Total evaluations
4
Tried for
anxious mood (3)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (3) anxious mood (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with celiac disease, who reported starting treatments within the last 5 years.
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Who has celiac disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 23
20s 135
30s 258
40s 247
50s 254
60s 138
70+ 34
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 204
20-29 years 161
30-39 years 93
40-49 years 80
50-59 years 38
60-69 years 8
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 177
Female 916

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 688
Not Diagnosed 90

These charts show data from celiac disease patients who have completed their condition history
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