Polymyositis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Polymyositis?

Polymyositis is a type of chronic inflammatory condition. Polymyositis causes muscle weakness, usually in the muscles closest to the trunk of your body. The cause of polymyositis is unknown and may involve multiple factors, perhaps related to autoimmune factors, genetics, and viruses.

Common symptoms reported by people with Polymyositis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Polymyositis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
4
Tried for
Polymyositis (4)
Check to add this treatment to your profile
Treatment name(s)

(FeraMAX)
Type
Supplement
How many have tried
2
Tried for
Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(5 HTP TR)
Type
Supplement
How many have tried
1
Tried for
Depressed mood (1) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
1
Tried for
Polymyositis (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with Polymyositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Polymyositis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Polymyositis (2 evaluations)
Side effects
Abdominal fat increased Acid reflux 11 more
How many evaluations
2
Tried for
Polymyositis (4)
Check to add this treatment to your profile
Treatment name(s)

(FeraMAX)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Constipation
How many evaluations
1
Tried for
Fatigue (2)
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
How many evaluations
1
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(5 HTP TR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Tylenol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (2 evaluations)
Side effects
How many evaluations
2
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Perceived effectiveness
for Polymyositis (1 evaluation)
Side effects
Mouth sores (ulcers)
How many evaluations
1
Tried for
Polymyositis (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)

Data from patients with Polymyositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Polymyositis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 3
30s 12
40s 26
50s 39
60s 28
70+ 2

Sex

Distribution of sex

83% Female
17% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 10
30-39 years 12
40-49 years 15
50-59 years 10
60-69 years 5
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 68
Not Diagnosed 5

These charts show data from Polymyositis patients who have completed their condition history
Last updated: