Chiari malformation

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What is Chiari malformation?

Chiari malformation is a malformation of the brain that causes structural defects in the cerebellum, the part of the brain that controls balance. It can cause headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, and, in severe cases paralysis.

Common symptoms reported by people with Chiari malformation

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Chiari malformation

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
pain (4) Chiari malformation (1)
Treatment name(s)
Type
Surgery
How many have tried
4
Tried for
Chiari malformation (4)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(MRI Brain)
Type
Procedures
How many have tried
3
Tried for
Chiari malformation (3)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
2
Tried for
Chiari malformation (1) pain (1)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2) stress (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Knee brace)
Type
Equipment
How many have tried
2
Tried for
pain (2)

Data from patients with Chiari malformation, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Chiari malformation

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive dry mouth intoxicated feeling 1 more
Total evaluations
2
Tried for
pain (4) Chiari malformation (1)
Treatment name(s)
Perceived effectiveness
for Chiari malformation (1 evaluation)
Side effects
Hospitalization
Total evaluations
1
Tried for
Chiari malformation (4)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
abdominal cramps
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(MRI Brain)
Perceived effectiveness
for Chiari malformation (2 evaluations)
Side effects
muscle and joint pain pain 1 more
Total evaluations
2
Tried for
Chiari malformation (3)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Chiari malformation (1 evaluation)
Side effects
slurred speech tiredness
Total evaluations
1
Tried for
Chiari malformation (1) pain (1)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
stomach pain
Total evaluations
1
Tried for
depressed mood (2) stress (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
depressed mood (2)
Treatment name(s)

(Knee brace)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Chiari malformation, who reported starting treatments within the last 5 years.
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Who has Chiari malformation on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 46
30s 115
40s 165
50s 122
60s 37
70+ 9
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 89
20-29 years 58
30-39 years 53
40-49 years 31
50-59 years 10
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 53
Female 448

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 323
Not Diagnosed 9

These charts show data from Chiari malformation patients who have completed their condition history
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