Chiari malformation

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What is Chiari malformation?

Chiari malformation is a malformation of the brain that causes structural defects in the cerebellum, the part of the brain that controls balance. It can cause headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, and, in severe cases paralysis.

Common symptoms reported by people with Chiari malformation

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Chiari malformation

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
pain (4) Chiari malformation (1)
Treatment name(s)
Type
Surgery
How many have tried
4
Tried for
Chiari malformation (4)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (2) anxious mood (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(MRI Brain)
Type
Procedures
How many have tried
3
Tried for
Chiari malformation (3)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (2) anxious mood (1)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
2
Tried for
Chiari malformation (1) pain (1)

Data from patients with Chiari malformation, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Chiari malformation

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive dry mouth high feeling 1 more
Total evaluations
2
Tried for
pain (4) Chiari malformation (1)
Treatment name(s)
Perceived effectiveness
for Chiari malformation (1 evaluation)
Side effects
Hospitalization
Total evaluations
1
Tried for
Chiari malformation (4)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sleepiness
Total evaluations
1
Tried for
anxious mood (3)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (2) anxious mood (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
depressed mood (3)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
abdominal cramps
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(MRI Brain)
Perceived effectiveness
for Chiari malformation (2 evaluations)
Side effects
muscle and joint pain pain 1 more
Total evaluations
2
Tried for
Chiari malformation (3)
Treatment name(s)

(Zoloft)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
depressed mood (2) anxious mood (1)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for Chiari malformation (1 evaluation)
Side effects
slurred speech tiredness
Total evaluations
1
Tried for
Chiari malformation (1) pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Chiari malformation, who reported starting treatments within the last 5 years.
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Who has Chiari malformation on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 46
30s 112
40s 156
50s 112
60s 35
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 87
20-29 years 58
30-39 years 53
40-49 years 30
50-59 years 10
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 48
Female 422

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 314
Not Diagnosed 9

These charts show data from Chiari malformation patients who have completed their condition history
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