Neuroretinitis

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What is neuroretinitis?

Neuroretinitis is the inflammation of the optic nerve and retina that may cause a complete or partial loss of vision.

Common symptoms reported by people with neuroretinitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with neuroretinitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Subutex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Remeron)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)

Data from patients with neuroretinitis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with neuroretinitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Subutex)
Perceived effectiveness
for pain (2 evaluations)
Side effects
sleeplessness unrefreshing or poor sleep
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (4 evaluations)
Side effects
lethargy
Total evaluations
4
Tried for
pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drowsiness fainting
Total evaluations
2
Tried for
anxious mood (1)
Treatment name(s)

(Remeron)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (1 evaluation)
Side effects
blackouts feeling sick 2 more
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Inderal)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (1)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
decreased appetite lightheadedness 2 more
Total evaluations
5
Tried for
anxious mood (1) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with neuroretinitis, who reported starting treatments within the last 5 years.
Last updated:

Who has neuroretinitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from neuroretinitis patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have neuroretinitis through your profile, those stories and data appear here too.

Got a question about living with neuroretinitis? Members in the forum might have the answers.