Tuberculosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is tuberculosis?

Tuberculosis is a chronic, progressive infection with a period of latency following initial infection. Although it occurs most commonly in the lungs it may occur in almost any organ system in the body, including the lymph nodes, bones/joints, gastrointestinal tract, pericardium, eyes, and skin.

Common symptoms reported by people with tuberculosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with tuberculosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
5
Tried for
tuberculosis (5)
Treatment name(s)
Type
Prescription Drug
How many have tried
2
Tried for
tuberculosis (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Actiq)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Nature's Bounty Vitamin B-12 Sublingual)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Finest Natural B-6)
Type
Supplement
How many have tried
1
Tried for
tuberculosis (1)

Data from patients with tuberculosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with tuberculosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for tuberculosis (4 evaluations)
Side effects
elevated liver enzymes tinnitus 1 more
Total evaluations
4
Tried for
tuberculosis (5)
Treatment name(s)
Perceived effectiveness
for tuberculosis (2 evaluations)
Side effects
orange colored urine fatigue 1 more
Total evaluations
2
Tried for
tuberculosis (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Actiq)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Nature's Bounty Vitamin B-12 Sublingual)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Finest Natural B-6)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
tuberculosis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with tuberculosis, who reported starting treatments within the last 5 years.
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Who has tuberculosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 27
30s 35
40s 27
50s 17
60s 12
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 9
30-39 years 6
40-49 years 0
50-59 years 0
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 62
Female 64

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 52
Not Diagnosed 5

These charts show data from tuberculosis patients who have completed their condition history
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